1. 

   Yann04 Senior Member (Voting Rights)

   Messages:

   2,059

   Location:

   Romandie (Switzerland)

   As for ME/CFS since we have so little findings, I think it would also be cool if patients could enter their own data, like blood tests and stuff, would maybe lead to interesting data, who knows. Or maybe the data would be so muddled by medications and undiagnosed comorbidities it would be useless?

    

   Yann04, Feb 3, 2025

   #41

   Murph and forestglip like this.
2. 

   Trish Moderator Staff Member

   Messages:

   58,974

   Location:

   UK

   An ethical minefield, I think.
   Much better for such data collection to be done systematically by researchers.

    

   Trish, Feb 3, 2025

   #42

   forestglip, alktipping, Murph and 3 others like this.

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