MEA Website Survey: Illness Severity and Definitions | 05 August 2019

[Andy]

What category of illness severity best reflects your (or the person you care for’s) current level of disability?

For this month’s website poll, we’d like to know what category of severity you feel most reflects your current level of disability.

This is obviously a snapshot poll and the reality over time is likely to be that your M.E. has fluctuated between categories, might have been relatively stable, progressively improved or deteriorated.

Your answers to the main question, and feedback in the resulting discussion on Facebook, Twitter and Instagram, will help Dr Shepherd, Hon. Medical Adviser to the ME Association in future discussions about Severe M.E with the NICE guideline committee.

You will find the website poll on the homepage of the website. It appears about halfway down the page, just below the ME Biobank promotion.

www.meassociation.org.uk/2019/08/mea-website-survey-illness-severity-and-definitions-05-august-2019/

 

[Sly Saint]

Its good that they are doing this and I agree that Very Severe should be reinstated, but as discussed on other threads eg
https://www.s4me.info/threads/me-severity-scales-discussion.9503/

none of the existing scales (and I really don't like the MEA one) really address the 'classification' (ie mild moderate severe) problem.

see also:
https://www.s4me.info/threads/why-are-the-majority-of-pwme-rarely-mentioned.7732/