1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 11th March 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

ME - The Movie. Ouch Disability Podcast BBCRadio

Discussion in 'General ME/CFS news' started by Skycloud, Nov 9, 2017.

  1. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    2,187
    Location:
    UK
    Last edited: Nov 9, 2017
    Hutan, Andy, Jan and 10 others like this.
  2. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Thanks. For some reason I'd assumed Ouch had stopped on the BBC. Anyone listened to this yet?
     
    MeSci likes this.
  3. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,569
    Location:
    UK
    Esther12 likes this.
  4. Skycloud

    Skycloud Senior Member (Voting Rights)

    Messages:
    2,187
    Location:
    UK
    I can't actually remember what the BBC article said, or anything much from this podcast. If anyone thinks that this thread should be merged with the BBC article or deleted that's fine with me, go ahead and report it. The way I am today by tomorrow I probably won't remember either item at all, or this thread, or this post. :)
     
  5. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    I see value in keeping them separate. Some people prefer podcasts, others prefer articles.
     
    MeSci and Skycloud like this.
  6. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    4,430
    Location:
    Cornwall, UK
    Source: BBC News
    Date: November 10, 2017
    URL: http://www.bbc.com/news/disability-41940865
    Ref: http://www.bbc.com/news/stories-41888146

    Full transcript of 'ME - The Movie'
    -----------------------------------

    A few weeks ago Jen and her husband, Omar, popped over to see us
    at the BBC to talk about their story. She describes her current health
    situation as being like a battery which only charges about 40%. I'm also
    not feeling so great at the moment, and you can probably hear it in both
    of our voices as we chat.

    As the opening credits roll on the film we see Jen lying on the floor
    completely unable to move, and her arms are shaking as she tries to pull
    herself up. It's a situation that I've been in more times than I would
    like to count and it's something that I think is very familiar for a lot
    of people with chronic illnesses. I started by asking her why she turned
    the camera on herself in that moment.

    JENNIFER - In that particular moment I had gotten up and tried walking
    to the bathroom, and I made it there but on the way back I just had that
    sensation, that premonition of 'oh my gosh, I'm going down!' I have
    these moments where I lose all muscle force and literally won't be able
    to lift my head or move my body. Omar was downstairs and I could hear
    him talking to someone but I was too weak to even call out and so I did
    what I often do when I am in that state, I had my phone with me and I
    just started recording.

    --------
    (c) 2017 BBC

    (Please go to link for rest of interview.)
     
    Last edited: Nov 12, 2017
  7. MeSci

    MeSci Senior Member (Voting Rights)

    Messages:
    4,430
    Location:
    Cornwall, UK
    Especially if they are temporarily deaf, as I tend to be at present!
     
    Trish and Esther12 like this.
  8. Esther12

    Esther12 Senior Member (Voting Rights)

    Messages:
    4,393
    Nightmare - I hope that improves quickly.
     
    Skycloud, MeSci and Trish like this.

Share This Page