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BBC: I made a film from my bed to prove my illness is real - Jen brea

Discussion in 'General ME/CFS News' started by Cheshire, Nov 9, 2017.

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  1. Cheshire

    Cheshire Senior Member (Voting Rights)

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    BBC's (long) review of Unrest:

    http://www.bbc.com/news/stories-41888146
     
    Joel, Cheesus, Andy and 33 others like this.
  2. Valentijn

    Valentijn Moderator Staff Member

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    Wow, another excellent one.
     
  3. Skippa

    Skippa Moderator Staff Member

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    Zippeeee!

    Hey, any awesome S4ME members want to write a review for us here?

    Or perhaps we could start a thread and everybody who's seen it can post their own review, long or short?

    In fact:

    Request, if anybody here has seen the film Unrest, would you be so kind as to start a review thread (in a public area) and string together one or two sentences (or more) review, and invite others to post their reviews?

    Heh, is that an abuse of mod orange writing powers?
     
    Last edited: Nov 9, 2017
  4. Sasha

    Sasha Senior Member (Voting Rights)

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    That's superb - so happy to see that on the BBC site.
     
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  5. Skycloud

    Skycloud Senior Member (Voting Rights)

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    One of the great things about all this good coverage is that I can use it as ammo to put into emails to friends; links they can look up. I want them to be interested in the film, know it's worth watching and watch it. I just sent my first email to a friend who though in remission has children with ME too. She's not really into advocacy, but I'm hopng this might galvanise her. She's out and about and has friends who are health professionals and/or are married to health professionals. I'm also working on one of my sisters to put time and effort into fundraising for ME - as soon as the DVD is out I want to send it to her.
     
  6. Snowdrop

    Snowdrop Established Member (Voting Rights)

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    Is it normal for the BBC site to not take comments?

    Also, they provide Ms Lipman's twitter address if anyone wants to thank her.
     
    Skippa, Luther Blissett and Sasha like this.
  7. Sasha

    Sasha Senior Member (Voting Rights)

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    Code:
    https://twitter.com/natashalipman/status/928558664100794368
     
  8. Valentijn

    Valentijn Moderator Staff Member

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    They never allow comments on any of their articles, as far as I know.
     
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  9. Wonko

    Wonko Senior Member (Voting Rights)

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    That's probably down to everyone having to pay for them, so they don't give a rats what people think, whereas privately owned media.....have to pretend to.
     
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  10. markiemark

    markiemark Senior Member (Voting Rights)

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    That article has blown so many recent articles out the water. It's good to see some thorough and good reporting!
     
  11. TiredSam

    TiredSam Moderator Staff Member

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    This is fairly amazing because the BBC news website has completely ignored ME for years. If you put ME or CFS into their search box on their news page, hardly anything comes up. Often when something hits the UK newspapers I've searched at the BBC news site and it's like ME doesn't exist. The occasional reference to radio shows that have featured ME, but absolutely nothing most of the time when an ME story hits the rest of the UK press.
     
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  12. Gingergrrl

    Gingergrrl Senior Member (Voting Rights)

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    @ Skippa is it okay to copy the review that I wrote on the other site to here? I'll have to wait and do it from my home computer vs. phone.
     
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  13. Barry

    Barry Senior Member (Voting Rights)

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    I think it might be very telling. The BBC may be starting to realise the game could soon be up. They perhaps don't relish the idea that the BBC could find itself front page news, of how incredibly biased, unethical and unprofessional their lacklustre reporting (not!) has been on ME. Being shown up to be everything they claim to not be, just might be starting to dawn on them. Probably a good few sphincter-twitching discussion going about how to extricate themselves from a trap of their own making.
     
  14. Wonko

    Wonko Senior Member (Voting Rights)

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    I doubt it, they were advocating that depressed people should do rock climbing without any safety equipment the other night - coz not having any may focus the mind more and not allow any capacity for thinking depressive thoughts. Another solution they were advocating was, after training in a group, depressed people should spend time giggling in a room on their own as therapy.

    So...do I think the BBC is getting more sensible or responsible...no.

    edit - on "Trust me - I'm a Doctor - Mental health Special"

    http://www.bbc.co.uk/programmes/b09dcvl0
     
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  15. Barry

    Barry Senior Member (Voting Rights)

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    Not quite what I said/meant :). Desperate would be nearer the mark.
     
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  16. RuthT

    RuthT Established Member

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    This piece is now in the’Top Stories’ in the magazine section of the BBC News App. Great result.
     
  17. Trish

    Trish Senior Member (Voting Rights)

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    The BBC is such a huge organisation, I have no idea whether those who, for example, gave air time to Crawley to publicise her FITNET and SMILE trials without critique, would even be aware that other parts of the organisation are giving Jen Brea or Charles Shepherd a hearing.

    I guess the real turning point would be if the science or health editors choose to produce a program that damns PACE, Wessely, Crawley and the whole BPS psychosomatic model of ME and promotes the biomedical evidence. I think we are still a long way from that, but there are some hopeful signs.
     
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  18. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

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    In my humble opinion, the BBC is so vast that occasionally things slip through the control of those at the top. That is why more controversial regional radio shows and TV programs get a first airing.

    The telling point is how many things are repeated or appear on the national platforms. Ever seen the Documentary about Operation Gladio? One of the most important ones they ever made, yet never repeated to my knowledge.

    People who occasionally make a program that upsets the powers that be are then nudged in the desired direction.

    People don't know that MI5 used to have an office in the BBC building to 'vet' the workers for their views.

    (Hollingsworth, Mark; Norton-Taylor, Richard (1988). Blacklist: The Inside Story of Political Vetting. London: Hogarth Press. p. 104. ISBN 978-0-70120-811-0.)

    What is done now I don't know, but I'm sure there's plenty of chats over lunch, at the lodge, and the golf course.

    I think by the time they update their views, it will already be 'mainstream' consensus.

    Of course, this is just my personal opinion, and I'm a well noted loon and idiot. ;)
     
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  19. Valentijn

    Valentijn Moderator Staff Member

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    Certainly :)
     
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  20. Skippa

    Skippa Moderator Staff Member

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    As val says, absolutely :) :thumbup:

    That'd be great!
     

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