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ME/CFS Fatigue Types Questionnaire (Jason 2009)

Discussion in 'Diagnostic Guidelines' started by adambeyoncelowe, Jul 28, 2018.

  1. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Does anyone have this questionnaire? I'm trying but failing to find it.
     
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  2. Trish

    Trish Moderator Staff Member

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  3. Melanie

    Melanie Senior Member (Voting Rights)

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  4. Melanie

    Melanie Senior Member (Voting Rights)

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  5. Melanie

    Melanie Senior Member (Voting Rights)

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  6. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Sadly, I can't find the actual questions in any of these links. It's supposed to be a 22-item questionnaire, if anyone has any more luck than me.
     
    Last edited: Jul 29, 2018
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  7. Melanie

    Melanie Senior Member (Voting Rights)

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    I have the 36 question scale. But if there is a 22 question, I'll keep looking.
     
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  8. Melanie

    Melanie Senior Member (Voting Rights)

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  9. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Thanks. I'll give up. It's possible it evolved into something else, but I don't think it's the DePaul Questionnaire, which was created earlier than this one.

    It's called the MFQT, and Jason claims it's the most effective questionnaire (he designed it specifically for ME) in a few papers.
     
    Last edited: Jul 29, 2018
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  10. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    It's from this paper: http://www.dsq-sds.org/article/view/938/1113

    It might simply be this list of symptoms:

    Items
    Limbs feel heavy when not moving them
    Dead, heavy feeling after exercise
    Muscle weakness even after resting
    Next day soreness after everyday activities
    Mentally tired after the slightest effort
    Physically drained after mild activity
    Minimum exercise makes you tired
    Mind racing when exhausted
    Body feels over-stimulated when very tired
    Hard to sleep because tense and agitated
    Hard to relax or reduce muscle tension
    Thinking is hard work and muddy
    Misplace items and cannot remember things
    When talking, much difficulty with words
    Do not have energy to do anything
    Lack the energy to talk to anyone
    Flu-like symptoms, such as sinus pain, etc.
    Muscle ache or pain all over body
    Feel like have a high temperature or fever
    Headaches and nausea
    Overwhelming sleepiness
    Dizziness

    I can't see how it's scored though.
     
  11. Melanie

    Melanie Senior Member (Voting Rights)

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    I'm gonna e-mail him. ;)
     
  12. Melanie

    Melanie Senior Member (Voting Rights)

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    I already got an e-mail back from him.



    ME/CFS Fatigue Types Questionnaire



    INTRODUCTION:


    There are many types of fatigue, but current medical terminology does not differentiate between them. We need to develop new terms that identify the many different types of fatigue, such as:


    Energy Fatigue (feeling of heaviness and immobilization without energy to do anything for long periods of time)



    Wired Fatigue (feeling of over-stimulation with extremely low energy)



    Brain Fog Fatigue (mental impairment with confusion, disorientation, and inability to function in daily activities)



    Post-Exertional Fatigue (feeling extreme weakness, discomfort, or sick after minimal amounts of activity)



    Flu Fatigue (feeling weak with flu symptoms, such as a high temperature)


    We would like to ask you several questions to allow us to better understand these different types of fatigue. But first, we would like to find out some information about you. Please do not write your name on this questionnaire so that your responses remain anonymous. All of your answers will be kept confidential.


    For all of the following questions, please provide or circle only one answer.


    1. What is your age now?........................................................................................... _______________


    2. To which of the following race(s) do you belong?

    Black, African-American........................................... 1

    White.......................................................................... 2

    American Indian or Alaska Native............................. 3

    Asian or Pacific Islander............................................ 4

    Some other race (Please write-in below)............... 5

    ___________________________________________


    3. Are you of Latino or Hispanic origin?

    ........... Yes............................................................................. 1

    No.............................................................................. 2


    4. Are you male or female?

    ........... Male........................................................................... 1

    Female....................................................................... 2


    5. What is your current marital status?

    Married....................................................................... 1

    Separated.................................................................. 2

    Widowed.................................................................... 3

    Divorced.................................................................... 4

    Never married............................................................ 5


    6. Do you have any children?

    No (Go to Question 7)............................................. 1

    Yes (How many children do you have?)............... 2

    ___________________________________________


    7. What grade or degree have you completed in school?

    Less than high school................................................ 1

    Some high school...................................................... 2

    High school degree or GED...................................... 3

    Some college (at least one year)

    or specialized training................................................ 4

    Standard college degree............................................ 5

    Graduate professional degree................................... 6


    8. What is your current and most recent occupation?

    a. Current occupation.......................................................................... _______________


    b. Most recent occupation................................................................... _______________



    9. Have you been diagnosed with chronic fatigue syndrome by a physician?

    ........... Yes............................................................................. 1

    No.............................................................................. 2

    10. Do you currently have chronic fatigue syndrome?

    ........... Yes............................................................................. 1

    No.............................................................................. 2


    11. Please indicate whether you are a:

    Yes No

    a. Student............................. 1 2

    b. Homemaker..................... 1 2

    c. Retired............................. 1 2

    d. Disabled........................... 1 2


    12. What is your current work status?

    On disability (Go to Question 13)............................ 1

    Unemployed (Go to Question 14)........................... 2

    Working part-time (Go to Question 14)................... 3

    Working full-time (Go to Question 14).................... 4


    13. For what condition do you receive disability compensation?

    ______________________________________________________


    14. Which of the following statements best describes your abilities during the last month?

    I am not able to work or do anything, and I am bedridden............................... 1

    I can walk around the house, but I cannot do light housework........................ 2

    I can do light housework, but I cannot work part-time..................................... 3

    I can only work part-time or perform some family responsibilities.................. 4

    I can work full-time but I have no energy left for anything else....................... 5

    I can work full-time and perform family responsibilities but

    I have no energy left for anything else............................................................. 6

    I can work full-time and perform family responsibilities

    without any problems with my energy.............................................................. 7


    15. Do you have any thoughts or suggestions about the need to develop better terms on the different types of fatigue?

    __________________________________________________________________

    _________________________________________________________________

    TYPES OF FATIGUE QUESTIONNAIRE


    In the first column, for the symptoms that you have experienced, please list the date when the symptom first occurred, including the month and year. If you cannot remember the month, please try to write the season (winter, spring, summer, or fall)


    In the second column, during the past 6 months, for the symptoms that you have experienced, please indicate how often the symptom occurred using the following choices:

    N = Never (Did not occur)

    S = Seldom (Once or twice, with each episode lasting no longer than a week)
    O = Often (At least two or more times for at least several weeks)
    U = Usually (At least 50% of the days of each month)
    A = Always (Everyday)


    In the third column, if you have experienced the symptom during the past 6 months, for the symptoms that you have experienced, please rate how bad or how much of a problem the symptom has been for you using a 0 to 100 scale, where 0 = no problem, 25 = minimal problem, 50 = a moderate problem, 75 = severe problem, and 100 = the most severe problem possible using the scale below:

    No Problem Moderate Problem Most Severe Problem

    0 10 20 30 40 50 60 70 80 90 100


    Start Date
    Frequency
    Month
    or
    Season
    Year

    N=Never
    S=Seldom
    O=Often
    U=Usually
    A=Always

    Severity 0 to 100


    Symptom
    Limbs feel heavy when not moving them
    Do not have physical energy to do anything
    Muscle weakness even after resting
    Lack the energy to talk to anyone
    Mind racing when exhausted
    Body feels over-stimulated when very tired
    Hard to sleep due to body and mind feeling tense and agitated
    Very hard to relax or reduce muscle tension
    Thinking is hard work and muddy
    Misplace items and cannot remember things
    Mentally tired after the slightest effort
    When talking, much difficulty with words
    Physically drained or sick after mild activity
    Dead, heavy feeling that occurs quickly after starting to exercise
    Minimum exercise makes you physically tired
    Next day soreness or fatigue after non-strenuous, everyday activities
    Flu-like symptoms such as nasal congestion, sinus pain, cough, etc.
    Muscle ache or pain all over body.
    Feel like have a high temperature or fever
    Headaches and nausea
    Overwhelming sleepiness
    Dizziness


    It does not quite translate in a copy/paste so I will try to download the atual chart and upload it here. Also, he sent me 2 other docs and if you want me to e-mail them to you ping me with your e-mail address.
     
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  13. Melanie

    Melanie Senior Member (Voting Rights)

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    ugh...there isn't an upload option?
     
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  14. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    This is helpful. To upload, there's a button next to 'post reply' that says 'upload a file'.

    I'm curious to try this out and see how accurate it feels. I was trying to find this when writing the response to the NICE scope.
     
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  15. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Already this feels more accurate than other questionnaires.
     
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  16. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    From the above study (extra line breaks added):

    Which I find very interesting. This is really useful for diagnosing ME, because it sifts out those who think they have PEM and those who actually do (or it suggests the PEM of healthy controls is emotional, rather than biological).
     
  17. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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  18. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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