1. Guest, our 'News in Brief' post for w/c 10th June can be found by clicking here.
    Dismiss Notice

ME/CFS Alert Episode 102: David Tuller Interview

Discussion in 'General ME/CFS News' started by Andy, Nov 16, 2018.

  1. Andy

    Andy Committee Member & Outreach

    Messages:
    6,478
    Likes Received:
    48,131
    Location:
    Hampshire, UK
    Llewellyn King interviews David Tuller
     
    ukxmrv, ahimsa, Webdog and 12 others like this.
  2. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    1,542
    Likes Received:
    12,766
    Link?
     
    Peter Trewhitt likes this.
  3. Andy

    Andy Committee Member & Outreach

    Messages:
    6,478
    Likes Received:
    48,131
    Location:
    Hampshire, UK
    In my post?
     
  4. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    4,289
    Likes Received:
    28,521
    Piccy clicky.
     
    Invisible Woman and Andy like this.
  5. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    1,542
    Likes Received:
    12,766
    Ah, for some reason in my usual browser the picture is there but not the link, but is there in my alternate browser. Go figure.
     
    Nellie, Trish and adambeyoncelowe like this.
  6. Nellie

    Nellie Senior Member (Voting Rights)

    Messages:
    161
    Likes Received:
    1,353
    Location:
    UK
    @Sean try:
     
    MEMarge likes this.
  7. Nellie

    Nellie Senior Member (Voting Rights)

    Messages:
    161
    Likes Received:
    1,353
    Location:
    UK
    @Sean I accidentally deleted my previous unhelpful reply, it was wrong anyway.

    No promises but try clicking on the the utube symbol, bottom right of the video screen, I hover over each symbol until I find it.

    That should change the www address to utube. Highlight the utube address and it should change to link that you want. (must be a better way of explaining this)
     
  8. Sean

    Sean Senior Member (Voting Rights)

    Messages:
    1,542
    Likes Received:
    12,766
    No, same as before. I can watch it in another browser, so no actual problem.

    But it is weird, never had this problem before with Youtube links here.
     
    Nellie likes this.
  9. DigitalDrifter

    DigitalDrifter Established Member (Voting Rights)

    Messages:
    94
    Likes Received:
    504
    Watched it. The view count Llewellyn King gets is pitiful, almost negligible by YouTube standards. Makes me think there are far less proper ME sufferers than I thought. What could they do to reach a wider audience?
     
  10. Andy

    Andy Committee Member & Outreach

    Messages:
    6,478
    Likes Received:
    48,131
    Location:
    Hampshire, UK
    Not sure how you can link lack of views of a video with a lack of "proper ME sufferers". What criteria do we need to achieve to be counted as proper ME sufferers?

    Principally, improve their promotion of the interviews e.g. they have a Facebook page, https://www.facebook.com/mecfsalert/, and their last post on it is 25th September. I appreciate their efforts but nowadays it's not about who has the highest quality output but who promotes their output the most successfully.
     
  11. Mithriel

    Mithriel Senior Member (Voting Rights)

    Messages:
    507
    Likes Received:
    4,029
    I find it very hard to watch videos and I think many other people with ME have this problem as well.
     
    Liessa, Sisyphus, MEMarge and 7 others like this.
  12. Trish

    Trish Moderator Staff Member

    Messages:
    12,935
    Likes Received:
    71,064
    Location:
    UK
    And most people with ME simply won't be aware such videos exist. I wasn't until I joined a forum.
     
  13. Sunshine3

    Sunshine3 Senior Member (Voting Rights)

    Messages:
    529
    Likes Received:
    3,743
    I would bet my last dollar that figures of M.E sufferers are greatly exaggerated. Add chronic fatigue to the bag though and that all changes.
     
  14. Stuart

    Stuart Established Member

    Messages:
    23
    Likes Received:
    153
    I can't watch videos, has anyone done a transcript?
     
    Invisible Woman likes this.
  15. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    1,067
    Likes Received:
    6,406
    You are so right, @Trish! Many with ME, are too sick to know much if anything about the bigger picture surrounding ME, including the fact there are many informative videos available. And, in many cases, problems with memory and comprehension may mean that what
    we've read doesn't stick.

    There may also be the noise factor with videos. I frequently find I need to adjust the sound up and down on videos, the TV etc.
     
    Sisyphus, Invisible Woman and Trish like this.
  16. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    3,036
    Likes Received:
    25,564
    Location:
    UK
    You can access one on Youtube (it took me a few minutes to figure out how), but it is not very accurate, to put it mildly.

    Would people like a transcript?
     
  17. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    4,150
    Likes Received:
    24,909
    Yes, please! Only, if you have the time and energy though @Sly Saint.
     
    ladycatlover, Andy and MEMarge like this.
  18. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    4,150
    Likes Received:
    24,909
    At the milder end of the scale many don't take it seriously enough, or take on board BPS advice to steer clear of other patients, so they don't educate themselves. Or they are still too busy struggling to work and have nothing left in the tank for themselves so can't investigate further.

    Sadly, I know some very mildly affected who will whinge as loudly as anyone else about how hard it makes life, but can't be arsed.
     
  19. DokaGirl

    DokaGirl Senior Member (Voting Rights)

    Messages:
    1,067
    Likes Received:
    6,406
    Good point, @Invisible Woman, another stigmatization of ME. Most dismiss it, so pwME with mild cases may dismiss it too, or are too busy struggling to stay afloat to find out about ME. The medical guidance they get may be, or is frequently incorrect.

    Also, at the milder end of the scale, pwME may not have received a diagnosis, or
    doctors may tell them they will get better, which at this point in scientific development is probably faulty
    management. Their mild form may worsen, and then they're hooped.
     
  20. Stuart

    Stuart Established Member

    Messages:
    23
    Likes Received:
    153
    Besides issues at times with actually watching videos due to vision or cognitive problems, I can't stream content with ISP and bandwidth limitations. It's a transcript or nothing.
     
    Invisible Woman and Trish like this.

Share This Page