ME and the Times- a change of direction? Merryn Crofts' inquest

Binkie4

Binkie4

Senior Member (Voting Rights)
https://www.thetimes.co.uk/article/...d-as-hysterical-vindicated-in-death-lq9j2lc7w

The Times today, page 25, also online.

Such a different tone from previous articles. Great quote from Charles Shepherd "the difference between ME and just feeling tired is the same as the difference between having a shower and drowning."

MErryn's mother seems to have been interviewed. She has been so helpful repeatedly to the cause of ME advocacy. Covers many areas- disbelief by doctors, fear of disbelief from family, review of Nice guidelines, severe ME. Another step on the way.

EDIT: the online article attached to the link is much briefer than the hard copy which is quite comprehensive. Will look for a link to hard copy.

Extracts from the full article below. Edited for copyright reasons.
ME left Merryn Crofts bed-bound and she died shortly after her 21st birthday

It took a death certificate for Merryn Crofts to be vindicated. For the last six years of her life she had fought to convince people that ME, the illness that had left her bed-bound, was real...

...Last week, Ms Crofts became only the second person in the UK to have her death recorded as a result of ME after a coroner concluded that it was the much misunderstood illness that was likely to have led to the gastrointestinal failure and other complications that caused her to starve to death...

... A misunderstood illness
Myalgic encephalomyelitis, which affects about a quarter of a million Britons, is recognised by the World Health Organisation as a neurological illness but there is disagreement between health professionals over whether it needs psychological interventions or is mainly physical.

The health watchdog Nice is updating its guidelines for treatment in England amid concern that one of the commonly recommended therapies, involving more exercise, may do more harm than good.

According to the ME Association, one in four sufferers is affected so badly that they are housebound, and in some cases unable to shower or feed themselves.

An ME Association spokesman said: “The difference between ME and just feeling tired is the same as the difference between having a shower and drowning.”
Click to expand...
 
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It is a good article. I'm not sure about GET CBT being regarded as psychological therapy rather than rehabilitative therapy. The clever quote regarding drowning actually came from someone on MEA Facebook in response to a call to how would we distinguish ME from TATT.

It's good to see sensitive serious reporting but having seen the excellent coverage by daily mail of the Lynn gilderdale case (2009?,) which once again highlighted the potential severity and destruction, yet recently headlines in there such as this might be proof it's not all in the mind etc, I don't think it necessarily represents as sea change
 
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