Maeve Boothby O'Neill - articles about her life, death and inquest

Nightsong said:
Checking PressReader (which digitises print publications) it seems there will be considerable coverage in today's printed newspapers. The Guardian:

The Telegraph:

The Daily Mail:

The Daily Express:
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Do any of the articles make note that the same thing is happening right now with at least 2 other women that we know of? Because this is the kind of thing they need to point out in the same articles, and it adds a lot of time pressure to the reporting, which makes for a good story. It's sad that we need a "good story" for editors to be interested, but this is the world we live in, PR over human rights.

I very much doubt that the reporters will find that information on their own.
 
MrMagoo said:
This one isn’t very clear. Dr Strain was seen as the lead but has no nutrition knowledge
Psych said it isn’t a terminal condition
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That a patient died from a condition that isn't terminal makes it so much worse. I assume whoever said that thinks it makes it better. It makes it 100x worse, it means the death was purely the result of negligence.

And this isn't the first one, so there is precedent that is also being ignored, which means lessons aren't learned, which also makes it such a clear case of criminal negligence. All on the backdrop of the NICE guideline that now cover this but are firmly rejected on arbitrary excuses. They arrived a bit too late to help Maeve, although that's entirely on the delay, and that makes that rejection look so much worse given that they never actually needed specialist knowledge anyway, they only had to not be rigidly dogmatic and do their damn job.

It never ceases to amaze the stuff that comes out of these people's mouths and how they rarely seen to consider the full implication of what they're saying. It makes it so clear that their behavior is 100% at fault and that they know it, but they almost boast about it because they're doing exactly what is expected of them.

Plus it shows how unserious the medical profession is about respect for mental illness, that they are willing to let patients die because of their own internal beliefs that it isn't important enough for them to care.
 
P Keeble is crashing so won’t report much more today (hardly surprising this would take a toll on anyone)
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“Maeve asked about contingency plan for if NG doesn’t work, on 28 June. It seems there was none”

I will look around twitter for snapshots of the inquest. Apparently Dr Weir is up this afternoon.
 
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This response from a GP on Facebook. We #pwME are not blaming the vast majority of #GPs who are doing their best without the help of qualified consultants or suitable support in hospital. Education is lacking and disagreement and stigmatisation is rife.
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https://twitter.com/user/status/1815686396469784707
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(Keeping in mind that an article about Maeve was also posted to the /r/medicine sub-reddit and it was quickly locked down after lots of very negative commentary, so reactions will vary)
 
From written evidence, GP Dr Shenton
“I don’t believe I can put ME on the death certificate because many of the Drs involved do not believe ME is a medical condition”
“Multidisciplinary was installed too late. Everything was too late”
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PA article about today's inquest via the Belfast Telegraph. Includes some details of David Strain's testimony:

https://www.belfasttelegraph.co.uk/...-specialist-beds-for-patients/a901025462.html

Some good quotes here:
“In the UK the amount of research that is being done into diagnostic tests and treatment for it is woefully inadequate considering this is a disease affecting at least a quarter of a million people who were young, vibrant and fit, healthy adults and are left with this terrible debilitating disease,” he said.
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Assistant Coroner Deborah Archer asked Prof Strain about the view of Miss Boothby-O’Neill’s family that there was a “culture of disbelief” among staff at the Royal Devon and Exeter Hospital that ME was a real illness.

“I start every conversation I have that this is a biological illness of unknown etiology that, just because we can’t do a test for it, doesn’t mean it is not real,” he said.

“When I open a conversation like that it is very difficult for people to tell me this doesn’t exist.

“In doing so I am potentially limiting people’s ability to argue with me, particularly around care.

“Outside of Maeve’s case, I have had very frank discussions with people trying to tell me this was a psychological illness or a psychosomatic illness.
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This is interesting:
“Since Maeve’s tragic case we have treated other people with severe ME and we have learnt and changed the way we manage it.
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I wonder how they've changed their management of it?
 
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Nightsong said:
PA article about today's inquest via the Belfast Telegraph. Includes some details of David Strain's testimony:

https://www.belfasttelegraph.co.uk/...-specialist-beds-for-patients/a901025462.html

Some good quotes here:



This is interesting:

I wonder how they've changed their management of it?
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I believe in his evidence he said pwS/VS ME get a side room with black out curtains automatically plus there has been specific S/VS ME training for nurses
Perhaps the Drs and Consultants could get that training too?
 
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