Maeve Boothby O'Neill - articles about her life, death and inquest

[Sly Saint]

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No disrespect to Sarah but he is qualified to talk about diabetes.

Image: Professor David Strain

University of Exeter Medical School, Exeter​

Dr David Strain based in the Diabetes and Vascular Research Centre at the University of Exeter Medical School.

His main focus is the health of older adults with diabetes; ensuring the right patient gets the right treatment. He has performed the only study to date demonstrating the feasibility of individualizing targets for older adults across Europe. This has informed the new UK guidance document for the management of older adults with diabetes and Frailty, of which he was lead author.

Additionally, he has performed a global project exploring the causes of clinical inertia in diabetes in conjunction with the IDF called ‘Time 2 Do More in Diabetes’. As a result he has initiated several projects in the UK across primary and secondary care aiming to reduce this phenomenon

Professor David Strain | The Association of British Clinical Diabetologists

abcd.care

 

[Cinders66]

ME/CFS Final Delivery Plan. (A national healthcare policy document)

My PA who has been a professional carer for 25 years will not be able to access the 3rd eLearning Module on severe and very severe ME/CFS, due to be available later this year because she does not have the required email account. For those who do not know the 'IDP' is the 'My Reality: Interim Delivery Plan' attached to the public consultation which took place in Sept/Oct 2023. Below are what I believe are the reasons why.

The following quotes are from the Final Delivery Plan





This feeds in to a problem with informed consent because of Montgomery v. Lanarkshire Healthcare Board [2015] Supreme Court decision.

Below is from a review of the legal aspects surrounding the principle of informed consent. It includes a discussion about the 'therapeutic exception' formerly known as 'therapeutic privilege'.

Author Emma Cave Professor of Healthcare Law, published 29 June 2017 https://journals.sagepub.com/doi/10.1177/1473779517709452#fn90-1473779517709452

Long read - mostly for medico-legal people - but includes this on therapeutic exception i.e. withholding of information:




GMC guidance on consent:

This guidance came into effect on 9 November 2020.

The guidance was updated on 13 December 2024 when regulation of physician associates and anaesthesia associates by the GMC came into effect.

https://www.gmc-uk.org/professional-standards/the-professional-standards/decision-making-and-consent

https://www.gmc-uk.org/-/media/documents/gmc-guidance-for-doctors---decision-making-and-consent-english_pdf-84191055.pdf

In this BMJ article written 2 years after the Montgomery decision, whose authors include a QC - 12 May 2017 https://www.bmj.com/content/357/bmj.j2224



It could be argued that the ME/CFS Final Delivery Plan, as a cross government healthcare policy document, tells doctors it's OK to carry on as before regarding severe and very severe patients, in particular.


ETA: The Montgomery case involved a pregnant woman with diabetes.

We need to push for patients affected being able to assess this in such an area of distrust, and lack of expertise especially. You’re suggesting a worrying motive around handling of very complex cases?
I also dislike how all of the severe ME APPG inquiry evidence gathering is behind the scenes when this can be live streamed. I understand that some might not want their testimony public but even the recruitment is hush hush and not in any of the online spaces I visit & there’s this aura, in my opinion, of cover up and keeping awkward stuff hidden. Where there should be lights , scrutiny, inclusion and openness there’s closed doors

 

[Cinders66]

Action for ME made Dr David Strain their Medical Advisor in 2021. He is setting us back decades.

President, patrons and medical advisors - Action for ME

Our President, Clare Francis MBE, has worked closely with Action for ME since 1987 and has had ME for more than 20...

www.actionforme.org.uk

Sonya Chowdhury, Chief Executive, Action for ME, says:

'Dr David Strain is our Medical Adviser and was appointed in June 2021.

Dr Strain brings a wealth of clinical and academic experience to our charity, as Senior Clinical Lecturer at the University of Exeter Medical School and as a consultant to the Devon ME/CFS specialist service. He leads the British Medical Association’s Covid-19 response team and has repeatedly drawn parallels between Long Covid and ME/CFS, calling for research to benefit all post-viral illnesses.'

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To be fair there isn’t many options and as an occasionally consulted Dr on general m.e he might not have been too bad. However, he clearly lacked regarding MBN & I saw problems in his early nhs modules but afaiu they were being open to feedback. I'd guess that the DHSC delivery plan groups or PAG doesn't have great number & breadth of severe ME experience in order to fully assess what’s being presented & why should not the community be allowed?