Oh right so he thinks cognitive disfunction has never been seen before. Wow.“Before COVID there really wasn’t this diagnosis of brain fog,” Dr. Halpin said.
maybe not a 'diagnosis' (because it was almost uniquely associated with ME/CFS) but it doesn't take much searching to find its use as a key symptom.
Martine used to work 60 hours a week. Long COVID changed everything
Martine van Boeijen used to grind out more than 60 hours a week at her Perth veterinary clinic while maintaining a strong running regime and a busy social life, but she now struggles to complete basic chores after long COVID turned her life upside down.
The 46-year-old, who first contracted COVID-19 in April last year, is one of about 500,000 Australians battling the aftershocks of COVID-19 and says more needs to be done to recognise and respond to its heavy burden.
Dr van Boeijen’s business, the Perth Cat Hospital, which was founded in 2016, struggled in her absence, losing about $400,000 in turnover. Growth at the clinic, which employs 21 people, has declined from 25 per cent in the first two years to about 15 per cent.
She returned to the clinic a month ago but can only manage about seven hours of admin work a week, which she completes on Mondays and Fridays. Long gone are her days of running 30 kilometres a week up and down the Swan River, and regularly socialising with friends.
“My life has been taken away from me,” Dr van Boeijen told The Australian Financial Review.
Dr Rachel David, the chief executive officer of Private Healthcare Australia, the industry peak body, said nearly $10 million had been paid out to members with long COVID and that it could put upward pressure on health insurance premiums.
That annoyed me too, so I decided to reply:Always a good look, blaming chronically ill advocates for something that, as far as we know, he himself hasn't done himself.
Possibly, but if so, he's being unclear again.I think that may just be James Coyne being unclear, as he often is.
Author is Peter Wark, Conjoint Professor, School of Medicine and Public Health, University of Newcastle, AU.The Conversation
We got some key things wrong about long COVID. Here are 5 things we've learned
quote:
In the past we had not devoted sufficient resources to treat post-infectious or immune syndromes such as myalgic encephalitis or chronic fatigue syndrome (ME/CFS). These syndromes are defined by excessive fatigue, which worsens after exertion, and include cognitive impairment or brain fog.
These symptoms are responsible for much of the disease and disability associated with long COVID in many people and are often more prevalent than respiratory problems.
Severe cases of long COVID, ME/CFS and other post-infectious syndromes may include a condition known as POTS (postural orthostatic tachycardia syndrome), where an excessive heart rate results in falls in blood pressure with even mild exertion.
Unlike survivors of COVID pneumonia, people with POTS are much less likely to benefit from traditional exercise-based rehabilitation programmes. Such programs may even exacerbate their symptoms.
Instead, approaches are proposed that have been previously applied to ME/CFS and POTS are proposed, including exercise pacing, and medication regimes. However, there is a lack of good evidence, and while trials are underway, they are few, especially in Australia.
Where do you think they should be?were are the log covid community?
And whose fault is that?However, there is a lack of good evidence,
Frankly, looking at what has happened with LC, we punched way above our weight. We even did a lot of debunking ourselves, it's just that it turns out that evidence is irrelevant in evidence-based medicine, and that, clearly, some patients are way less equal than others.One could well ask when is Coyne's profession – psychology – going find a spine and put the rogue psychosomatic cult within it, that is quite clearly the root cause of all this unnecessary trouble for ME and LC patients, on a very short stout leash?
How come the pros can't manage to deliver on their end of the deal? We have more than delivered on ours.
Starting soon! Solve M.E. and @IAmBiotech are kicking off a #LongCovid virtual event series today, featuring opening remarks from Senator @timkaine.
ADM Rachel Levine, MD @HHS_ASH discusses leveraging the patient experience to develop #LongCovid therapeutics and provide pathways to remission and recovery, and explains how these efforts will benefit people with #MECFS, #Dysautonomia, and other associated conditions.