Long Covid Clinic, Dr Binita Kane YouTube videos

Sly Saint

Sly Saint

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Treating ME and Long COVID with Dr. Jennifer Curtin
TWENTYONE: Welcome to Episode 15 of The Long COVID Clinic's Fireside Chats with Dr. Binita Kane and Helen Oakleigh! In this episode, we are joined by Dr. Jennifer Curtin, Chief Medical Officer and Co-founder of RTHM in San Francisco, California. Dr. Curtin is an infection-associated illness expert, specialising in Myalgic Encephalomyelitis (ME) and its comorbidities. She brings a unique perspective as both a clinician and a mostly recovered ME/CFS patient, with a deep understanding of the challenges faced by Long COVID and ME/CFS patients. Dr. Curtin co-authored the official clinical guidance for ME/CFS in the United States and is a member of the ME/CFS Clinician Coalition. Her work is dedicated to advancing the understanding of these complex post-viral conditions and delivering innovative treatment solutions to the millions of patients affected worldwide.

Dr. Binita Kane, a consultant respiratory physician with a special interest in post-viral syndromes, continues to lead this informative series, advocating for better healthcare access and support for chronic illness patients.

Alongside co-host Helen Oakleigh, they make complex medical topics accessible, helping patients and caregivers navigate the often-challenging healthcare landscape.

In this episode, Dr. Binita Kane aims to explore Dr. Curtin’s personal journey, from her recovery from ME/CFS to co-founding RTHM. They will look to discuss treatment approaches for ME/CFS and Long COVID, addressing both medical and non-medical interventions. Dr. Curtin will aim to share insights into chronic co-infections, her approach to treating Long COVID, and the development of an acute COVID recovery kit.
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Treating ME and Long COVID with Dr. Jennifer Curtin
 
Posts moved from Be Nourished - Rachel Jessey


The last video was with Nadine McKie.

https://www.youtube.com/live/JzQPA1QXDGw?si=RDaXJUdUyJ63Kji0

I'm not sure if anyone else saw it, but would say don't if you don't wish to traumatised yourself.

It was basically psychosomatic babble about the body not feeling safe, how through imprints into our nervous system from early life trauma we get stuck in fight and flight and then need to feel safe to heal.

It seems like she had/ has long covid, as does her son and is now trying to teach others dodgy theory.

Really quite concerning to see this being shown.
 
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Binita Kane seems to sign up to an awful lot of unsubstantiated ideas, which is a problem since she's also a go-to quote source for various journalists. Contributes to the impression in some quarters that Long Covid is basically imaginary.
 
Eleanor said:
Binita Kane seems to sign up to an awful lot of unsubstantiated ideas, which is a problem since she's also a go-to quote source for various journalists. Contributes to the impression in some quarters that Long Covid is basically imaginary.
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I got really concerned when she had a series of Rehab people on to talk about how great exercise was for curing Long Covid.
 
It is worth saying that there are lots of decent videos in the YouTube series. And alot of work must go into them. There's one with David Putrino, Amy Proal and Todd Davenport.

Maybe though with a monthly series you run out pretty quickly of reliable experts. And the temptation is to then bring in more fringe 'medicine'?
 
Sparkly Unicorn said:
Maybe though with a monthly series you run out pretty quickly of reliable experts.
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I am not sure that there are any reliable experts. We have had some pretty unhelpful material from some of the people you mention there. Nobody knows anything much about Long Covid so I am sceptical about the value of doing this at all. Most Long Covid is not ME/CFS. It gets better like most post-viral fatigue. If Paul Garner had not been told his Long Covid was ME/CFS we might have been saved a lot of bother.
 
Sasha said:
Why does it take so long, say, up to a couple of years or so? What immune processes have failed to switch themselves off, or isn't that the issue with PVF?
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It must be an issue and I suspect it has a lot in common with what fails to switch off in ME/CFS. But for ME/CFS some other factor keeps bringing the problem back. T cell population expansions probably continue for weeks after infection and it may be that they fall to recede in both cases. IgM antibody carries on for months. Short lived plasma cells last for about 3-6 months. There are quite a lot of things that might be left over for months. But in ME/CFS it seems that something allows them to keep rekindling. And maybe that rekindling process has something to do with the phenomenon of PEM.

The simplest way to build a story would probably be that neurons are involved in a loop such that they can tell lymphocytes to go on doing things over months or years. For at least 40 years there has been a story that immune and nervous systems interact both ways and that this is feasible. Lymphocytes have receptors for acetyl choline and noradrenaline. But there has never been very convincing evidence that nerves can tell adaptive immune cells what to do long term. It is hard to see how they would target specific cell groups. But maybe the relevant cells are innate cells and what matters is a general overstimulation of something like MAIT or NK cells. NK cells seems unlikely since they seem to be low if anything in ME/CFS.
 
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