Live Landmark - Lightning Process coach (Norway)

inox said:
That's not what's happening here - she _does_ know. She has been ill with ME herself and have visited several severe patients by their bedside.
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Even worse, then. I've only heard of Liv Landmark through patient forums an and so was trying to be fair, give her some benefit of the doubt.

Cynical attempt to exploit the sick for one's own personal gain. Lovely! Unfortunately, there's a lot of that about.
 
Landmark has written an opinion piece where she argues for the removal of the ME/CFS disgnosis.

She claims that (my summary, might contain mistakes).
  1. Many with ME/CFS have the wrong diagnosis
  2. PEM is found on FM and healthy people
  3. The diagnosis you receive is dependent on which doctor you see
  4. There are no definitive biomarkers
  5. That being diagnosed with ME/CFS by itself makes it more likely that you end up being ill for a long time, compared to receiving another diagnosis
  6. Predictive processes creates the symptom
  7. Being told to pace makes it worse and reinforces the symptoms
  8. Reframing your illness can lead to recovery
  9. The patients don’t need a stronger illness identity
  10. The patients need explanations for their symptoms to allow them to recover
There are 28 citations to mostly terrible papers.

This is the end of the piece:
Patients do not need a stronger disease identity [28]. They need knowledge about what actually influences recovery, and a real hope that change is possible. For the health care system, this requires a shift in focus. One must stop staring blindly at the diagnosis and instead concentrate on functioning, coping, and the gradual building of tolerance.

When the world's most comprehensive studies fail to find a single biological cause, it points in one direction. ME is not an isolated island in medicine. It is a complex condition that requires a holistic approach. The crucial question is not what label the patient wears. It is how we help people return to life.
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www.forskersonen.no

Det er på tide å si farvel til ME-diagnosen

KRONIKK: ME-diagnosen skader mer enn den hjelper. I dagens debatt fremstilles ME som en klart avgrenset sykdom. Det er den ikke, skriver innsenderen.
www.forskersonen.no www.forskersonen.no

The obvious answer to her critique about misdiagnosis is to train doctors in what ME/CFS actually is so they stop giving the diagnosis to anyone with fatigue.

The lack of biomarker argument is a non-starter.

And studies with loosely defined inclusion criteria have demonstrated that her approach doesn’t work.
 
"A central symptom in the debate is “PEM”, post-exertional malaise. This is often cited as evidence that ME is a unique biological disease. The reality is different. PEM is reported in a variety of conditions, including fibromyalgia [7] [8], depression and in healthy individuals [9].

Recent data show that as many as 60 percent of patients with health anxiety report the same. “PEM” is largely based on the subjective narrative of the patients."



What does she mean with "patients with health anxiety report the same"? Report that they have PEM?
 
Given so many of these people conflate PEM with fatiguability we really need better information if we are to accept that PEM is common to a number of conditions. This is an echo of the previous BPS conflation of the symptom of fatigue with CFS and/or ME/CFS.
 
When the world's most comprehensive studies fail to find a single biological cause, it points in one direction
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It's so hard to believe this putrid nonsense is the level of discourse in medicine, in professional publications, when they face the slightest bit of challenge. Literally pre-Enlightenment nonsense. After everything that happened, after all this time, and we are still dealing with the same Week-end at Freudie's.
 
rvallee said:
It's so hard to believe this putrid nonsense is the level of discourse in medicine, in professional publications, when they face the slightest bit of challenge. Literally pre-Enlightenment nonsense. After everything that happened, after all this time, and we are still dealing with the same Week-end at Freudie's.
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It also ignores the fact that most basic research on ME/CFS hasn’t been done yet, in large part due to certain people insisting ME/CFS is psychosomatic..
 
Just continuing on the fine tradition of solving a problem by reframing it as something else while also denying it exists in the first place.
 
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