Laura Hillenbrand 2020 —Her MECFS has improved and she has Covid-19

https://www.oregonlive.com/coronavi...-felt-like-i-was-breathing-through-gauze.html

I just posted this under the thread about famous people with Covid, but making a new thread because in this interview Laura indicates her CFS has improved a lot.

If her written accounts are an accurate portrayal of her illness, Laura would have been classed as having moderate M.E (with some severe episodes). It's still astounding that someone can be ill for decades and then have a decent 'recovery' after 25 years.
 
Sounds to me more like severe. But she must not have had much in the way of cognitive symptoms if she wrote a bunch of books. I’ve mentioned this before but it seems to me that people who don’t have cognitive symptoms have a better prognosis.

I think she did have cognitive and neurological symptoms. If I recall she couldn't read for a while. It is worth re-reading her essay on becoming ill, because it's very good. https://www.newyorker.com/magazine/2003/07/07/a-sudden-illness
 
Yes, she was severely ill. It is heartening that some recovery is possible.
She was dreadfully sick during her first marriage, and basically lived in the bedroom, and suffering terrible vertigo--from what I read. However, I also read that initially during the 2000s she did not seek help. But from what I read, not sure where--could have been on Cort's blog, that she eventually did start seeing some CFS physicians. I tried to find out whom she saw, but was unable to learn this. She does seem healthier now that she is in Oregon, and presumably under medical care, but I have no idea what this is--and would dearly like to know if she took antivirals, or what. But I guess this is personal information.
 
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She was dreadfully sick during his first marriage, and basically lived in the bedroom, and suffering terrible vertigo--from what I read. However, I also read that initially during the 2000s she did not seek help. But from what I read, not sure where--could have been on Cort's blog, that she eventually did start seeing some CFS physicians. I tried to find out whom she saw, but was unable to learn this. She does seem healthier now that she is in Oregon, and presumably under medical care, but I have no idea what this is--and would dearly like to know if she took antivirals, or what. But I guess this is personal information.
I doubt that's useful information. For every person who's miraculously recovered by one treatment or other, there are hundreds more who didn't.
 
https://www.nytimes.com/2020/06/27/...l?action=click&module=Opinion&pgtype=Homepage

From a Loss, Something Found

No, not ME/CFS (well one sentence), but only to note that this article appears on the same page as the article about Post-Covid brain dysfunction that does NOT mention ME/CFS--posted on this page here https://www.s4me.info/threads/possibility-of-me-or-pvfs-after-covid-19.14074/page-30


In my rowhouse in the clatter of Washington, D.C., my only view was the back of another house, about as far as I’d ever been able to see during years spent largely housebound with an illness that was finally beginning to let me go.


 
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