La Trobe University ME/CFS research programme

Discussion in 'News from organisations' started by Dolphin, Sep 3, 2024.

  1. Dolphin

    Dolphin Senior Member (Voting Rights)

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  2. MEMarge

    MEMarge Senior Member (Voting Rights)

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    Would be good if the above link said ME rather than chronic fatigue. (Have just replied to his Tweet asking for this)

    The headline on the linked page is:
    Support Myalgic Encephalomyelitis/ Chronic Fatigue research

    Though the blurb says:
    "With donors like you, we can find solutions to Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - a debilitating and little understood condition affecting up to 250,000 people in Australia, 25 per cent of whom are housebound or bedbound.

    I thought This Uni was one of the better ones in AUS.
     
    Last edited by a moderator: Sep 8, 2024
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  3. Leila

    Leila Senior Member (Voting Rights)

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    This is off topic just a little surreal. I got ill at that very university and wasn't able to go back by the end of the semester. I didn't know they do biomedical research let alone in ME.
     
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  4. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights) Staff Member

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  5. Mij

    Mij Senior Member (Voting Rights)

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  6. Ravn

    Ravn Senior Member (Voting Rights)

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    That website needs a little work

    Usually I keep my donations within NZ, partly out of local loyalty and partly because the tax credit allows me to donate more in total. But sometimes I make an exception like here where I wanted to show my appreciation for this team's, especially @DMissa's active engagement on the forum

    But La Trobe don't make it easy. It's bad enough that you have to get past the "chronicfatigue" in the website address and ignore the lack of information on the page itself, plus the "Chronic Fatigue research" blooper hasn't been fixed yet either

    But then it turns out it's impossible to make donations from NZ unless you happen to live in one of the larger cities. For some reason there are obligatory drop-down menus for suburb and city but with a very limited selection of choices. It was mildly amusing to contemplate how the very independently minded residents of a number of towns would feel if they knew they'd been demoted to suburb of who knows what distant city. As for my address, there was no way to enter it at all

    Out of interest, I also checked Denmark and France and they have text entry fields rather than drop-down menus, so they don't have the same problem (should anyone from there wish to donate)

    Maybe you can let the relevant IT people at La Trobe know @DMissa? Not that missing out on my modest donation would make any real difference but if that glitch is more widespread affecting other donation pages or other countries than the few I checked it may well be worth their while to get it fixed
     
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