1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 15th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

Journalist looking to speak to people with ME/CFS for an article

Discussion in 'General Advocacy Discussions' started by Sly Saint, May 16, 2019.

Tags:
  1. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    9,584
    Location:
    UK
    Sly Saint, May 16, 2019
    #1
    MEMarge, Sean, Hutan and 6 others like this.
  2. Andy

    Andy Committee Member

    Messages:
    21,943
    Location:
    Hampshire, UK
    #ChronicFatigue?? Hmm.
     
    Andy, May 16, 2019
    #2
    Binkie4 and MEMarge like this.
  3. roller*

    roller* Senior Member (Voting Rights)

    Messages:
    249
    roller*, May 16, 2019
    #3
    Barry, adambeyoncelowe, Andy and 2 others like this.
  4. chicaguapa

    chicaguapa Senior Member (Voting Rights)

    Messages:
    107
    She’s interviewing me on Wednesday and she seems to be doing her research. It sounds promising.
     
    chicaguapa, May 18, 2019
    #4
    ukxmrv, Barry, Joh and 25 others like this.
  5. chicaguapa

    chicaguapa Senior Member (Voting Rights)

    Messages:
    107
    I spoke to Catherine today. She’s very much on the biological side and said she’s spoken to many medical professionals and none of them subscribe to the bps model. She’s hoping to get the article in one of the mainstream papers, hopefully the Guardian.
     
    chicaguapa, May 22, 2019
    #5
    ukxmrv, Chezboo, Barry and 33 others like this.
  6. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,636
    Location:
    Oregon, USA
    That's good news - thank you :heart:
     
    ahimsa, May 24, 2019
    #6
    SarahandElly, Barry, Yessica and 4 others like this.
  7. NelliePledge

    NelliePledge Moderator Staff Member

    Messages:
    13,274
    Location:
    UK West Midlands
    @chicaguapa did you tell her the Guardian doesn’t generally run anything without at least a tinge of BPS ideology
     
    NelliePledge, May 24, 2019
    #7
    ukxmrv, Barry, rvallee and 4 others like this.
  8. chicaguapa

    chicaguapa Senior Member (Voting Rights)

    Messages:
    107
    Yes, I did! I said almost exactly that. And that it would therefore be very welcome if her article was published in there.
     
    chicaguapa, May 30, 2019
    #8
    ukxmrv, Sly Saint, Chezboo and 8 others like this.
  9. Barry

    Barry Senior Member (Voting Rights)

    Messages:
    8,385
    Regarding the blood test she is wanting to talk about, don't we need to be careful here? Although Ron Davis' team are confident it discriminates between pwME and healthy controls, I don't think it is yet proven to discriminate between ME and other illnesses. I know Ron Davis says he's hopeful, but don't want to go counting our chickens before hatched, especially in public.
     
    Barry, May 30, 2019
    #9
    Andy and Esther12 like this.

Share This Page