1. Read the 'News in Brief' post for w/c 16th Sept by clicking here, Guest.
    Dismiss Notice

Is hereditary alpha-tryptasemia behind MCAS/dysautonomia/hEDS cases?

Discussion in 'Hypersensitivity and Intolerance Reactions' started by strategist, Aug 4, 2019.

  1. strategist

    strategist Senior Member (Voting Rights)

    Messages:
    1,904
    Likes Received:
    18,931
    The NIH has a page on this:

    https://www.niaid.nih.gov/research/hereditary-alpha-tryptasemia-faq

    (I edited this so that it quotes the NIH directly)
     
    Last edited: Aug 4, 2019
  2. strategist

    strategist Senior Member (Voting Rights)

    Messages:
    1,904
    Likes Received:
    18,931
    Kitty likes this.
  3. Binkie4

    Binkie4 Senior Member (Voting Rights)

    Messages:
    1,223
    Likes Received:
    9,122
  4. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

    Messages:
    5,266
    Likes Received:
    54,600
    As far as I can see this page tells us nothing useful. Almost every sentence includes 'may' this or 'may' that. A number of statements suggest that whoever is writing it does not really understand what is science and what is hearsay. I suspect that as in the UK government bodies like NIH are increasingly allowing all sorts of doubtful stuff to be put up on webpages. The scramble to be patient friendly has led to nobody trying to tease out the facts from the garbage.

    The page seems to say that it is not known whether the tryptase level has anything to do with mast cells. I don't see what it would have to do with dysautonomia. And I don't think there is any evidence for a genetic link to hEDS.
     
    obeat and TrixieStix like this.

Share This Page