1. Sign our petition calling on Cochrane to withdraw their review of Exercise Therapy for CFS here.
    Dismiss Notice
  2. Guest, the 'News in Brief' for the week beginning 8th April 2024 is here.
    Dismiss Notice
  3. Welcome! To read the Core Purpose and Values of our forum, click here.
    Dismiss Notice

International: Science for ME social media posts

Discussion in 'Advocacy Projects and Campaigns' started by Andy, May 1, 2022.

Page 3 of 10
  1. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Dec 5, 2022
    #41
    alktipping, Starlight, Peter Trewhitt and 1 other person like this.
  2. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Dec 12, 2022
    #42
    oldtimer, NelliePledge, Peter Trewhitt and 1 other person like this.
  3. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,634
    Location:
    Oregon, USA
    @Andy, with all that's going on with twitter have you considered making a mastodon account?

    Just curious, please do not interpret my question as a request to do extra work!

    Very grateful for all the work you do :heart:
     
    ahimsa, Dec 12, 2022
    #43
    Lilas and Peter Trewhitt like this.
  4. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Yes, we have considered it but frankly I have no desire to add another social media account to my workload, so currently it won't happen until either Twitter dies completely or the potential audience on Mastodon exceeds that of Twitter, and if it did then the Twitter account would be mothballed.
     
    Andy, Dec 13, 2022
    #44
    Lilas, alktipping, ahimsa and 3 others like this.
  5. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

    Messages:
    2,203
    I’ve posted the Science for ME forum weekly news update on Mastodon each week for the last four or five weeks e.g. today
    https://disabled.social/@tomkindlon/109535046192441891
     
    Tom Kindlon, Dec 18, 2022
    #45
    alex3619, Lilas, ahimsa and 3 others like this.
  6. Trish

    Trish Moderator Staff Member

    Messages:
    52,221
    Location:
    UK
    Trish, Dec 18, 2022
    #46
    MEMarge, Lilas, ahimsa and 2 others like this.
  7. ahimsa

    ahimsa Senior Member (Voting Rights)

    Messages:
    2,634
    Location:
    Oregon, USA
    I boost ("retweet") @Tom Kindlon 's posts on Mastodon so I will add my thanks here, too!

    I also do my own post of the Science for ME news once a week, usually on Mondays. (I'm often not online on Sunday) And then I pin it to my profile so it shows up first.

    There's no algorithm on mastodon. You only see things in your home timeline if they are posted while you are online. Even if you are following a hashtag (eg, #MEcfs) you won't see any older posts unless you search for that hashtag. Unlike twitter, a post will never show up in your feed just because lots of other people liked it or boosted it.

    Based on that I think that multiple posts, and multiple posting times, seems to be more important when you want to spread information.

    Edited to add a link to my last #Science4ME news post:

    https://disabled.social/@ahimsa_pdx/109502511795431404
     
    ahimsa, Dec 18, 2022
    #47
    alktipping, Peter Trewhitt, Trish and 3 others like this.
  8. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    4,414
    Location:
    Aotearoa New Zealand
    @Trish kindly posts the news in brief each week. This means that external sites may use her (fab) avatar and render like this:

    Screenshot 2022-12-19 at 3.31.24 PM.jpg

    Appreciate this would be an extra step, but to promote externally, I wonder if it could be straightforward to post the news in brief from a generic account, using the S4ME logo for an avatar.
    Screenshot 2022-12-19 at 3.34.39 PM.jpg

    Note: Twitter doesn't do this, but Mastodon does — I don't think we would have technical control over this in terms of the URL we provide as a link in the post.
     
    Last edited: Dec 19, 2022
    SNT Gatchaman, Dec 19, 2022
    #48
    Sean, RedFox and Peter Trewhitt like this.
  9. SNT Gatchaman

    SNT Gatchaman Senior Member (Voting Rights)

    Messages:
    4,414
    Location:
    Aotearoa New Zealand
    I presume Mastodon is looking at the linked post and using the <img> tag in that post's HTML, whereas Twitter is looking upstream to the site's main logo. (Twitter has an internal link shortener and it possibly caches a single logo for a given domain.) From our end, XenForo may have the ability to turn off avatar display or user detail in a particular forum, so that could be a potential solution.
     
    SNT Gatchaman, Dec 19, 2022
    #49
    Sean and Peter Trewhitt like this.
  10. Trish

    Trish Moderator Staff Member

    Messages:
    52,221
    Location:
    UK
    I did suggest some time ago that I could have a more official account for posting the news. I'll raise it again with the committee.
     
    Trish, Dec 19, 2022
    #50
    ahimsa, Sean, Peter Trewhitt and 1 other person like this.
  11. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Dec 19, 2022
    #51
    alktipping, ahimsa, Peter Trewhitt and 2 others like this.
  12. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Dec 26, 2022
    #52
    SNT Gatchaman, ahimsa, oldtimer and 1 other person like this.
  13. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Jan 2, 2023
    #53
    ahimsa, Trish, Peter Trewhitt and 1 other person like this.
  14. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Jan 9, 2023
    #54
    Hutan, ahimsa, alktipping and 2 others like this.
  15. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Jan 9, 2023
    #55
    Hutan, ahimsa, alktipping and 3 others like this.
  16. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Jan 16, 2023
    #56
    Hutan, ahimsa, SNT Gatchaman and 2 others like this.
  17. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Jan 23, 2023
    #57
    Hutan, ahimsa, Peter Trewhitt and 3 others like this.
  18. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Jan 30, 2023
    #58
    ahimsa, Hutan, alktipping and 2 others like this.
  19. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    January's News in Brief thread posted to Reddit.

    Code:
    https://www.reddit.com/r/cfs/comments/10qoxr4/the_mecfs_and_related_news_in_brief_posts_for/
     
    Andy, Feb 1, 2023
    #59
    ahimsa, Dolphin, Peter Trewhitt and 2 others like this.
  20. Andy

    Andy Committee Member

    Messages:
    21,912
    Location:
    Hampshire, UK
    Andy, Feb 6, 2023
    #60
    Hutan, ahimsa and Peter Trewhitt like this.
Page 3 of 10

Share This Page