Increased hunger during PEM crash

Discussion in 'General and other signs and symptoms' started by forestglip, Sep 22, 2024.

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  1. forestglip

    forestglip Senior Member (Voting Rights)

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    I get much more hungry during crashes. Not sure if it's anxious eating, since my anxiety also increases, or related to some mechanism of ME.

    I have been averaging around 2000 calories for a few weeks. I'm in a crash now from some intense computer focus sessions the past few days, and I'm at 3200 calories for today. Was craving potato chips so bad I had to drive to the store just to buy them.

    Anyone else experience this?
     
  2. hotblack

    hotblack Senior Member (Voting Rights)

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    I tend to be more in the having trouble eating or eating enough category when I’m bad. When appetite and ability to eat returns it’s generally a good sign for me. I definitely notice an impact on mood too though.
    Hope you uncrash soon and the potato chips were good :)
     
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  3. Wyva

    Wyva Senior Member (Voting Rights)

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    I can't really eat a lot in a bad crash but I simultaneously crave carbs like crazy, especially sweet things, pastry etc. It feels like my body is telling me to get more energy right now.
     
  4. Peter Trewhitt

    Peter Trewhitt Senior Member (Voting Rights)

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    It is not uncommon for me in PEM to have both nausea and hunger pangs. I both want to eat and don’t want to eat at the same time. Definitely not fun.

    I am never sure at such times if it is normal hunger because I am likely to be struggling to prepare or get any food or if it is PEM related as like @Wyva I am craving sugar and carbohydrates. If I have them in the house I am likely to end up eating chocolate or cake and biscuits instead of getting a real meal.
     
  5. ME/CFS Skeptic

    ME/CFS Skeptic Senior Member (Voting Rights)

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    I have this as well.
     
  6. Amw66

    Amw66 Senior Member (Voting Rights)

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    I have no idea about males, but in females hormones can play a significant role in feeling hungry - linked to estrogen.
    There's some research linked to menopause where this can become more acute.

    My daughter has no appetite at all , apart from the week prior to her period when she is ravenous as estrogen reduces.
    Perhaps it plays a part .ETA estradiols affect appetite in energy reduced states ( in mice)
     
  7. Mij

    Mij Senior Member (Voting Rights)

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    I lose my appetite during delayed PEM and after overdoing. I feel dehydrated.
     
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  8. NelliePledge

    NelliePledge Moderator Staff Member

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    I get carb cravings during PEM. Also some mild nausea.
     
  9. JemPD

    JemPD Senior Member (Voting Rights)

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    Yes i relate to this. It is the weirdest thing. It also depends and is very changeable, sometimes I feel nauseated, feel i couldnt eat a thing and am sometimes sick (especially if i have to 'push through' to get to bathroom or something), but, while I'm lying still, sometimes it can be only a few minutes later I'll have a strong drive/craving for food - sugar in particular.

    It is bizarre. I always assumed that the urge for suagr was a psych thing - i do comfort eat.

    I am also extremely thirsty during PEM, excessively so. Cold drinks like diet 7up with ice in, or Morrisons sugar free peach squash, really cold... its like nectar, intensely satisfying, but only for a short while, then thirsty again - easily go through 3-4litres a day while in PEM. Occasionally though I do lose the thirst, no hunger no thirst, but thats not typical.

    What i notice most is a dysregulated appetite, i either have none & am happy to not eat all day - especially during an 'adrenaline rush', or my entire being is crying out for food, body & mind asking for food food more & more food, until i get really bad & am throwing up when it goes to nausea & cravings alternating.
     
  10. forestglip

    forestglip Senior Member (Voting Rights)

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    It's mainly carb cravings for me, but mainly starches like bread and potatoes. I don't really crave simple sugar foods like candy, fruit, or sugary drinks. I would think if it's about a physiological need to fuel some energy intensive process, I would crave the easy and fast energy source?
     
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  11. Helene

    Helene Senior Member (Voting Rights)

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    I experience more hunger than usual during PEM also. I don't crave sugar as I am intolerant to anything with added sugar and unfortunately most fruit but am just more hungry in general.
     
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  12. Ash

    Ash Senior Member (Voting Rights)

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    Yes simple sugar for immediate energy. But it may be your body is trying to balance or level something out. Also starchy carbs, still provide quick release energy and are more easily digested when compared to proteins and fats. Also starch is anxiety calming, sedating helps sleep which might speed recovery.
     
    Last edited: Sep 25, 2024
  13. bobbler

    bobbler Senior Member (Voting Rights)

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    I don’t think so but can’t really think that far back without taking a bit of time to do so in detail (ME is always not straightforward).

    firstly my crashes tend to be me ‘carking out’ completely so it’s more like the ‘sleeping beauty’ illness programmes I saw years ago where when you are only awake and able to move for a few hours whether you are hungry or not you know you need to make the most of them eating wise because of weight and health.

    when I was less ill and working then it was as I was in a long deterioration that things dropped because I was too exhausted by the time my break from obligations came to eat as much. And it only takes a bit of a drop across all meals and appetite when you have them and it starts to show.

    on the other hand when I’m ’pushing It’ ie trying to push the boundaries where it more like I was holding off PEM by staying slightly over threshold (then when the adrenaline stops the crash hits and is long the longer you’ve done that for) then I had to have continual sugar - even sweets by my bed for when I woke up,

    so there’s probably a big difference on what I was eating. And years ago when today’s description of me it was barn door what I had but it was all badly described then couched in behavioural stuff … well you can add caffeine to that too. It was basically ore about propping up body keeping upright with little and often

    agree i think you do notice that things like fruit and veg that I normally do very much need go by the wayside not just because of the energy to eat (and digestion, nausea gif some things but not other ‘simple stuff that won’t lay on stomach) vs what you get but also accessibility - though I try and keep fruit to hand.

    I relate very much to @JemPD ’s post
     
    Last edited: Sep 26, 2024
  14. JellyBabyKid

    JellyBabyKid Senior Member (Voting Rights)

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    I was just making lunch and realised just how incredibly hungry I was - form long before lunch time - very loud rumbling, which i rarely have!

    I am currently battling regular exhaustion, PEM and ptsd - the combination of which has made my ADHD sooo much worse and I am absolutely ravenous currently, which made me think about this thread, as I know I read it recently. So, yes, another vote for "PEM makes me really hungry"

    I am not sure if I crave protein, or I just find eggs on toast for lunch is enough to make me feel full? (temporarily) I also had a strong urge for biscuits yesterday so another vote for carbs/sugar cravings.

    I also had this recently - I just could not drink enough water - also really cold. I would drink a pint of it and think "that's better" and immediately realise that it wasn't - I was still thirsty. I possibly should have balanced it with electrolytes as I felt quite...odd, until I ate something.

    Does this add to or point to known hypothesis about what is going awry in ME and/or PEM?
     
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  15. oldtimer

    oldtimer Senior Member (Voting Rights)

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    Definitely PEM and hunger are related for me and rubbish food is what I crave. Once in a while, maybe once a month at the most, I give in to it and just eat biscuits and chocolate from mid afternoon. I don't feel great the same day but, without fail, every time I do this I wake up feeling surprisingly healthy and normal the next morning and the PEM has completey gone. I hate to think what it does to me but I suppose it won't hurt to do it infrequently.
     
  16. forestglip

    forestglip Senior Member (Voting Rights)

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    I've said a couple times that my main craving when I have PEM is for chips (I think that's crisps for the Brits). I'm starting to wonder if the craving is really for salt since they are one of the saltiest foods I can think of.

    Last night I was really craving chips (specifically tortilla chips because I have one bag of these I'm trying to resist eating). To try to eat something a bit healthier, I instead microwaved a pound of potatoes, and was too tired to cut them to put any salt on. After eating them, I still really wanted the chips.

    I then drank 9 grams of iodized salt mixed in some water, and for the most part I wasn't really craving them anymore.

    It's possible there was just some delay after eating the potatoes that the craving went away. Will keep testing.
     
    Last edited: Mar 3, 2025
  17. Yann04

    Yann04 Senior Member (Voting Rights)

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    During PEM I get especially super thirsty. But also more hungry. Unsure if the extra hunger is due to not sleeping as much because the extra hunger is usually at night.
     
  18. Mij

    Mij Senior Member (Voting Rights)

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    @forestglip

    A good alternative is popping your own popcorn. It doesn't take too much energy to make. It also contains tryptophan and sometimes I fall asleep with my hand still in the bowl.

    I add sea salt and nutritional yeast. Nutritional yeast tastes salty and has a cheese flavour so it hits the spot.
     
  19. Chestnut tree

    Chestnut tree Senior Member (Voting Rights)

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    I am also a potato craver haha.

    Have you tried oven fries? Do not take that long to prepare and easy.
     
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  20. forestglip

    forestglip Senior Member (Voting Rights)

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    At most I'll cut them in half, but yeah I sometimes stick a lot of potatoes in the oven. Very tasty when they get crispy.
     

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