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Illness duration, mood and symptom impact in adolescents with chronic fatigue syndrome/myalgic encephalomyelitis?, 2019, Neale et al

Discussion in 'PsychoSocial ME/CFS Research' started by Andy, Jun 15, 2019.

  1. Andy

    Andy Committee Member & Outreach

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    A study published as a letter, I'm confused.
    Paywall, https://adc.bmj.com/content/early/2019/06/13/archdischild-2018-316720
    Sci hub, https://sci-hub.se/10.1136/archdischild-2018-316720
     
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  2. Jonathan Edwards

    Jonathan Edwards Senior Member (Voting Rights)

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    Lightweight studies are often offered the option of publication as a letter. In the old days full papers were called 'Letters' by Nature.
     
  3. Esther12

    Esther12 Senior Member (Voting Rights)

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  4. ladycatlover

    ladycatlover Moderator Staff Member

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    No shit Sherlock. :rolleyes: So you're going to

    Yet another waste of money study into the bleeding obvious.

    "Oh, I'm 16 and supposed to be at school and studying for A-Levels but I can't get to school. I'm ecstatic about that, means I don't get to see my friends as well - just fabulous." :sick:

    What's with these idiots? :banghead:
     
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  5. Trish

    Trish Moderator Staff Member

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    I think it's a move aimed at getting more money for their clinic so they can see patients sooner. Or more information for teachers and GP's to recognise it sooner and refer patients. Looks like it's a retrospective trawl through questionnaires filled in by kids at their first clinic appointment, not a specially set up study.

    If it were a clinic doing good work helping with pacing, helping getting help with education, getting kids diagnosed and treated early would be good. If not...
     
  6. rvallee

    rvallee Senior Member (Voting Rights)

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    Wouldn't the opposite be really surprising? What kind of idiot expects very sick people to be worry-free and happy? Especially as they lose much of their life and normal support systems, including friends and family, abandon them whole.

    Next you're going to tell me that people experiencing acute pain don't smile as much as people who aren't? That people slapped hard in the face tend to be more profane-prone than otherwise? G R O U N D B R E A K I N G.

    I didn't know there was a direct path from clown college to medical school. Who even gives degrees to people so utterly incapable of using judgment and common sense?
     
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  7. inox

    inox Senior Member (Voting Rights)

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    This isn't as bad as others looking into mood and ME. They are not making assumptions about causation. They are only observing that children who have been ill for longer before specialist assessment have more worries/mood issues.

    This mostly looks like presenting data for arguing for faster access to specialist for children, that this center can use for grants applications.

    They do not, however, have data on wether early access to diagnoses/specialist care lessens the worry/mood issues. But they mention low general knowledge about ME as a possible reason for the delay.

    I don't know how they care for children with ME at that center, but the overall feeling from this letter is something that's done with the intention of arguing for better access to care in general. Not the usual "cbt all the bad ME-thoughts away".
     

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