Discussion in 'BioMedical ME/CFS News' started by Sly Saint, Sep 26, 2018.
Very professional event yet again from Invest in ME.
Got to chat with a number of researchers, I don't want to count my unhatched chickens but I'm hopeful of getting three or four Q&As from today.
Does anyone know if there's a DVD of the conference to order? I had a look at the IiME website but couldn't find anything.
Whether there’s enough Brits there and why they aren’t us up for debate but it looks like an absolute stellar cast of scientists, not just from America either. So well done IIME, I think they’re a bit lost Ito of actual research direction themselves since rituximab but this year conference looks fabulous.
I think It is a bit odd that it’s NIH involved & Solve promoting this whereas I’m guessing our MRC don’t attend and our charities havent mentioned it. I personally always saw the CMRC conference as an attempt to sideline Iimes already established fabulous conference and to essentially show case the MRC funded stuff and get a perhaps more “broad church”narrative out there (bearing in mind Esther Crawley , intent on behaviour approach was the top CFS dog for the first years). Imo just promoting the Iime conferences instead of setting up a different one would have been as helpful because the actual science and purely biomedical research for complex illness invest in ME manage to pull off is precisely what I’d love Uk “interested” professionals, the MRC and young PHD students etc to see and be engaging with. Apart from the Norwich researchers how many Brits were presenting or attending and learning from all this? What were audience sizes like and who was in it? Perhaps I’d be pleasantly surprised and I’m very pleased to see that UK physio I’ve seen getting engaged with the community attending and I’m sure blown away.
There were at least 3 researchers that seem to be new to ME/CFS.
IiME filmed the talks as usual and, after editing and processing, will be posting them on their website.
Thanks Andy - do you mean they'll be posting a link to buy the DVD (rather than posting the video footage)?
Their usual thing is to allow discounted 'early bird' pre-orders but I haven't seen any of that. They don't usually wait for the DVDs to become available.
I know I'm responding to a, relatively, old post. While the Harvard group on the Friday was, to my knowledge, solely represented by Ron Tompkins and Michael VanElzakker, I'm aware that the two exercise researchers from Nottingham attended the "early career researchers" event on the Tuesday. I have no information on Janet Lord from Birmingham (UK).
A note on Janet Lord, she would, at least to me from her profile, seem to be a very valuable person, for many reasons, to bring into the ME research field.
Professor Janet M Lord FMedSci, Director of the Institute of Inflammation and Ageing Director of the MRC-Arthritis Research UK Centre for Musculoskeletal Ageing Research
Nope, the videos will be free to view on their website.
Really?! That's a big step forward, and I'm really pleased to hear that IiME have taken it.
Looking forward to seeing the videos! I seem to remember that it's usually July by the time the DVDs arrive so hopefully not having to produce a physical object and mail it will speed things up a bit.
Was there anything new or potentially groundbreaking that stood out? There was barely any live tweeting on the first day?
I'll try to provide a summary of my thoughts in the next day or so but my initial reaction would be there was no stand-out announcement, the day was more about reports of progress being made from those established in the ME research field or introductory talks from those newer to the field. Other people may have a different view.
Thank you. That was my impression as well. Sadly!!
Well we do have the metabolic trap and it seems to still be a viable hypothesis... Fingers crossed!
Did you see this twitter thread @Grigor .
Someone combined the tweets in a thread reader app. Good overall summary.
Ah saw the tweets but shared the thread. Awesome. Thanks.
Dr Fluge mentioned that the follow up period was extended, I believe, by a further 12 months, and that publication is due this year.
write up by Chris Armstrong
(from an email)
report on the conference by Ros Vallings
http://www.investinme.org/Documents/IIMEC14/IIMEC14 Conference ReportRV.pdf
Separate names with a comma.