Ideas on exercise and ADLs

[wabi-sabi]

I've been watching a lot of presentations on rehab lately and they all stress being consistently out of PEM and not doing exercise at the expense of PEM. But...I'm feeling a tiny bit better and going stir crazy in bed.
So I'm wondering if anyone has ideas on how to adapt the exercise vs ADLS thing when one is mostly bedridden. The thing is, all my ADLS except flossing my teeth involve being out of bed. I am not willing to give up showering even if it does PEM me, because I've been at the bedbath stage and it's disgusting. I will take weekly PEM to feel weekly clean. But exercise- now that I can do lying down in bed. There are lots of exercises for bedridden patients that I seem to be able to do without PEM (or at least a lot less PEM than being upright) because I do them while flat.

What do you think?

 

[Eleanor]

I sometimes do this kind of thing https://www.uhsussex.nhs.uk/resources/bed-exercises/

the hard bit is stopping after doing a few reps.

 

[MeSci]

I wasn't familiar with ADLS so looked it up - apparently it means Activities of daily living.

 

[wabi-sabi]

the hard bit is stopping after doing a few reps.

Isn't that the truth! That's part of my question too- how do you know when to stop? I always want to do more, or course!

 

[wabi-sabi]

Activities of daily living

Yes, it means things like feeding yourself, being able to get to the toilet under your own power, bathing, dressing, brushing your teeth. It's meant to be the bare minimum of things a person needs to do to care for themselves, but doesn't include things like cooking a meal or grocery shopping, getting to a doctor appointment or managing your bank account.

The idea being, if you are too ill to brush your teeth, you really shouldn't be trying to exercise. But sometimes I choose to do bed exercises rather than brush my teeth because I need to live a little.

 

[Mij]

Not knowing when to stop for someone who is bedbound/severe isn't worth the gamble imo

It's hard though not being able to do much Wish there was a way.

 

[wabi-sabi]

someone who is bedbound/severe isn't worth the gamble imo

My mast cells are so insane that brushing my teeth causes more of a reaction that doing floor exercises. I just don't get it!

But I am trying to be careful about not going overboard.