Tom Kindlon
Senior Member (Voting Rights)
I couldn't see a thread on this
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IACFS/ME 2023 Medical and Scientific Conference
- Thread starter Tom Kindlon
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Tom Kindlon
Senior Member (Voting Rights)
2023 IACFS/ME Conference Schedule
https://docs.google.com/document/d/1V2zQjycW-mkRwaIh7V6SXVZKHNCRVVr5/edit
https://docs.google.com/document/d/1V2zQjycW-mkRwaIh7V6SXVZKHNCRVVr5/edit
Ravn
Senior Member (Voting Rights)
Heaven help us! They've given a workshop slot to the quack Perrin, and some of the treatment talk topics sound highly dubious.
I despair. Why do they persist in giving respectability to quacks. And this time we patients have no access unless we can be there in person.
I remember last year they asked participants if they wanted to be involved in the organisation and I offered to help vetting presenters and weeding out quacks after seeing several poster presentations that shouldn't have been given places. Heard nothing back.
I despair. Why do they persist in giving respectability to quacks. And this time we patients have no access unless we can be there in person.
I remember last year they asked participants if they wanted to be involved in the organisation and I offered to help vetting presenters and weeding out quacks after seeing several poster presentations that shouldn't have been given places. Heard nothing back.
From an email:
And a reminder of the link to the Conference Schedule linked in Tom's tweet posted above:
https://docs.google.com/document/d/1V2zQjycW-mkRwaIh7V6SXVZKHNCRVVr5/edit
Conference website:
https://www.iacfsme.org/2023-conference-main-page/
And a reminder of the link to the Conference Schedule linked in Tom's tweet posted above:
https://docs.google.com/document/d/1V2zQjycW-mkRwaIh7V6SXVZKHNCRVVr5/edit
Conference website:
https://www.iacfsme.org/2023-conference-main-page/
I have reviewed the conference website and took an interest in the ‘sponsors’, one being oxaloacetate CFS, with their branding of ‘medical food for chronic fatigue syndrome’. Please discuss.
Edit to add: the oxaloacetate ‘people’ are also presenting at the conference .
Edit to add: the oxaloacetate ‘people’ are also presenting at the conference .
Good to raise it as an issue, but probably best to continue the discussion on this thread: Oxaloacetate
We also have a couple of threads on research:
Open USA: RESTORE ME: A RandomizEd Double Blind Placebo Control Trial to Determine the EffectS of OxaloaceTate On ImpRoving FatiguE in ME/CFS
Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman
In summary, there were huge problems discussed on the thread with the way this trial was done and reported.
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I added to my post that Dr Kaufman will also be presenting at the conference. In my view it represents a conflict of interest, particularly if Kaufman or any authors are also selling the product.
DMissa
Senior Member (Voting Rights)
That list of speakers is a merry mix of the excellent, the unknown and the 'what were they thinking'
Will you be presenting any new data @DMissa ?
(For the record, I do not class Daniel in the 'what were they thinking' category and he's also not unknown, which only leaves one option)
Yep, I will be. It's not final and needs a lot more analysis, and is only a small update on a small branch of the projects I'm working on, but I hope it's at least interesting. Looking at combined metabolomes and lipidomes from whole cells using the lymphoblastoid cell lines. Am under embargo regarding the abstract so cannot provide more detail than the publicly available title.
I wish I had a lot longer to present... I have lost track of the number of projects I have going at the moment. All unpublished because so busy doing the lab work and analysis that I've had no time to write anything up!
Anyway maybe not quite "excellent", but trying my best as always
. As always you are too kind.
I certainly wish the conference had more Daniel and less oxaloacetate.
Dolphin
Senior Member (Voting Rights)
Copy of tweet:
Solve ME/CFS Initiative
@PlzSolveCFS
During the recent 2023 IACFS/ME Conference, Solve M.E. was thrilled to present Dr. Anthony Komaroff with a Lifetime Achievement Award, recognizing his outstanding contributions to biomedical science and patient advocacy. He's pictured here with Solve CEO Oved Amitay (right).
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Andy
Retired committee member
From an email from IACFSME.
2023 IACFS/ME Conference: Video Recordings Now Available for Purchase!
The cost of one pass to the online video recordings is $300 USD for Non-Members
and $250 USD for IACFS/ME Members.
Your purchase includes:
a. Unlimited, online access to all presentations until October 31. 2023 at 11:59 PM EDT (New York City time).
b. 100+ page conference program with abstracts for each oral and poster presentation.
Purchase at https://iacfsme.growthzoneapp.com/ap/Events/Register/aPd026KP
2023 IACFS/ME Conference: Video Recordings Now Available for Purchase!
The cost of one pass to the online video recordings is $300 USD for Non-Members
and $250 USD for IACFS/ME Members.
Your purchase includes:
a. Unlimited, online access to all presentations until October 31. 2023 at 11:59 PM EDT (New York City time).
b. 100+ page conference program with abstracts for each oral and poster presentation.
Purchase at https://iacfsme.growthzoneapp.com/ap/Events/Register/aPd026KP
Dolphin
Senior Member (Voting Rights)
Cornell Center for Enervating NeuroImmune Disease
Celebrating Excellence! We're thrilled to announce that Dr. Maureen Hanson was honored with the Outstanding Research Scientist Award at the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis conference!
Dr. Hanson's dedication, innovative spirit, and tireless commitment to advancing research in ME/CFS has earned her this well-deserved recognition. Her work not only impacts the scientific community but also brings hope to individuals worldwide.
Join us in applauding Dr. Hanson for her outstanding achievements and contributions to the field!
Celebrating Excellence! We're thrilled to announce that Dr. Maureen Hanson was honored with the Outstanding Research Scientist Award at the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis conference!
Dr. Hanson's dedication, innovative spirit, and tireless commitment to advancing research in ME/CFS has earned her this well-deserved recognition. Her work not only impacts the scientific community but also brings hope to individuals worldwide.
Join us in applauding Dr. Hanson for her outstanding achievements and contributions to the field!