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IACFS/ME 2023 Medical and Scientific Conference

Discussion in 'ME/CFS research news' started by Tom Kindlon, Jun 28, 2023.

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  1. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    I couldn't see a thread on this
     
    Tom Kindlon, Jun 28, 2023
    #1
    Hutan, Ravn, DokaGirl and 1 other person like this.
  2. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Tom Kindlon, Jun 28, 2023
    #2
    Trish, Lisa108, Ravn and 3 others like this.
  3. Ravn

    Ravn Senior Member (Voting Rights)

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    That list of speakers is a merry mix of the excellent, the unknown and the 'what were they thinking'

    Will you be presenting any new data @DMissa ?

    (For the record, I do not class Daniel in the 'what were they thinking' category and he's also not unknown, which only leaves one option :))
     
    Ravn, Jun 29, 2023
    #3
    mango, Jacob Richter, Binkie4 and 11 others like this.
  4. Trish

    Trish Moderator Staff Member

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    Heaven help us! They've given a workshop slot to the quack Perrin, and some of the treatment talk topics sound highly dubious.

    I despair. Why do they persist in giving respectability to quacks. And this time we patients have no access unless we can be there in person.

    I remember last year they asked participants if they wanted to be involved in the organisation and I offered to help vetting presenters and weeding out quacks after seeing several poster presentations that shouldn't have been given places. Heard nothing back.
     
    Trish, Jun 29, 2023
    #4
    Ash, lycaena, Mithriel and 13 others like this.
  5. Trish

    Trish Moderator Staff Member

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    Trish, Jul 2, 2023
    #5
  6. Milo

    Milo Senior Member (Voting Rights)

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    I have reviewed the conference website and took an interest in the ‘sponsors’, one being oxaloacetate CFS, with their branding of ‘medical food for chronic fatigue syndrome’. Please discuss.

    Edit to add: the oxaloacetate ‘people’ are also presenting at the conference .
     
    Milo, Jul 3, 2023
    #6
    Ash, RedFox, Hutan and 1 other person like this.
  7. Trish

    Trish Moderator Staff Member

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    Good to raise it as an issue, but probably best to continue the discussion on this thread: Oxaloacetate
    We also have a couple of threads on research:

    Open USA: RESTORE ME: A RandomizEd Double Blind Placebo Control Trial to Determine the EffectS of OxaloaceTate On ImpRoving FatiguE in ME/CFS

    Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman
    In summary, there were huge problems discussed on the thread with the way this trial was done and reported.
     
    Last edited: Jul 3, 2023
    Trish, Jul 3, 2023
    #7
    Ash, RedFox, Hutan and 2 others like this.
  8. Milo

    Milo Senior Member (Voting Rights)

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    I added to my post that Dr Kaufman will also be presenting at the conference. In my view it represents a conflict of interest, particularly if Kaufman or any authors are also selling the product.
     
    Milo, Jul 3, 2023
    #8
    Ash, Missense, RedFox and 1 other person like this.
  9. DMissa

    DMissa Established Member (Voting Rights)

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    Yep, I will be. It's not final and needs a lot more analysis, and is only a small update on a small branch of the projects I'm working on, but I hope it's at least interesting. Looking at combined metabolomes and lipidomes from whole cells using the lymphoblastoid cell lines. Am under embargo regarding the abstract so cannot provide more detail than the publicly available title.

    I wish I had a lot longer to present... I have lost track of the number of projects I have going at the moment. All unpublished because so busy doing the lab work and analysis that I've had no time to write anything up!

    Anyway maybe not quite "excellent", but trying my best as always ;). As always you are too kind.
     
    DMissa, Jul 21, 2023
    #9
    Ash, Amw66, Ron and 13 others like this.
  10. Hutan

    Hutan Moderator Staff Member

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    I certainly wish the conference had more Daniel and less oxaloacetate.
     
    Hutan, Jul 21, 2023
    #10
    Amw66, Missense, RedFox and 7 others like this.
  11. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Last edited by a moderator: Jul 30, 2023
    Dolphin, Jul 29, 2023
    #11
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  12. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Last edited by a moderator: Jul 30, 2023
    Dolphin, Jul 29, 2023
    #12
    Kitty, Hutan, Solstice and 2 others like this.
  13. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Last edited by a moderator: Aug 8, 2023
    Dolphin, Aug 7, 2023
    #13
    RedFox, cfsandmore, Fizzlou and 4 others like this.
  14. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Dolphin, Aug 10, 2023
    #14
    Sean likes this.
  15. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Last edited: Aug 21, 2023
    Dolphin, Aug 18, 2023
    #15
    ahimsa and Sean like this.
  16. Andy

    Andy Committee Member

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    From an email from IACFSME.


    2023 IACFS/ME Conference: Video Recordings Now Available for Purchase!

    The cost of one pass to the online video recordings is $300 USD for Non-Members

    and $250 USD for IACFS/ME Members.

    Your purchase includes:

    a. Unlimited, online access to all presentations until October 31. 2023 at 11:59 PM EDT (New York City time).

    b. 100+ page conference program with abstracts for each oral and poster presentation.

    Purchase at https://iacfsme.growthzoneapp.com/ap/Events/Register/aPd026KP
     
    Andy, Aug 31, 2023
    #16
    Dolphin likes this.
  17. Trish

    Trish Moderator Staff Member

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    Well, that's one conference I definitely won't be watching. That's a ridiculously high price.
     
    Trish, Aug 31, 2023
    #17
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  18. Dolphin

    Dolphin Senior Member (Voting Rights)

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    Cornell Center for Enervating NeuroImmune Disease

    Celebrating Excellence! We're thrilled to announce that Dr. Maureen Hanson was honored with the Outstanding Research Scientist Award at the International Association for Chronic Fatigue Syndrome/Myalgic Encephalomyelitis conference!

    Dr. Hanson's dedication, innovative spirit, and tireless commitment to advancing research in ME/CFS has earned her this well-deserved recognition. Her work not only impacts the scientific community but also brings hope to individuals worldwide.

    Join us in applauding Dr. Hanson for her outstanding achievements and contributions to the field!

     
    Dolphin, Sep 8, 2023
    #18
    Wilhelmina Jenkins, MEMarge, Sean and 2 others like this.

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