'I’m just ill – respect me for who I am'

Andy

Andy

Retired committee member
Excellent lived experience article.

A health practitioner told me I seem too happy to have "chronic fatigue syndrome".

About the attitude "you're too smart to be disabled". Very early on with ME I needed a wheelchair when I had the flu. While in a public place, a fellow, I guess thinking he was being very open minded and friendly, spoke very loudly, and slowly to me using simple words. Apparently, if one is in a wheelchair, one is also hearing impaired, and mentally challenged.
 
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I became ill just over a year after getting married. I was still working, but it was a struggle. One lunch hour, a chiropractor and long-time family friend saw me and my husband walking outdoors during lunch hour. At my next appointment he said: "Anyone who can look at their husband that lovingly can't possibly be sick". I was gobsmacked.

So, to add to the list of things we can't be (young, attractive, happy, smart, healthy "looking"), we also can't have good relationships.
 
MsUnderstood said:
I became ill just over a year after getting married. I was still working, but it was a struggle. One lunch hour, a chiropractor and long-time family friend saw me and my husband walking outdoors during lunch hour. At my next appointment he said: "Anyone who can look at their husband that lovingly can't possibly be sick". I was gobsmacked.

So, to add to the list of things we can't be (young, attractive, happy, smart, healthy "looking"), we also can't have good relationships.
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Basically: you're not allowed to be happy, even for a moment. Also: you should do acceptance therapy, it will cure you. And I don't believe your "vague" diagnosis that can't be tested for so you definitely have the vaguest possible diagnosis that can't be tested for.
 
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