Huffington Post: 7 Things People With ME (Chronic Fatigue Syndrome) Want You To Know

[Kalliope]

7 Things People With ME (Chronic Fatigue Syndrome) Want You To Know

Chronic fatigue syndrome, or myalgic encephalomyelitis (known as ME) is a long-term illness that affects more than 250,000 people in the UK, according to the ME Association. Despite the high numbers of sufferers – who are mostly women – it is considered a hidden disease and widely misunderstood.

The NHS says the most common symptom is extreme tiredness. People with ME may also experience sleep problems, muscle or joint pain, headaches, sore throat, flu-like symptoms, feeling dizzy or sick and fast or heart palpitations.

“It is an invisible illness,” says Dr Charles Shepherd, of the ME Association. “When you see people with ME, we might not always look ill, but when our symptoms flare, the effects are obvious. Our bodies are painfully sore and ‘brain fog’ causes confusion.”

 

[Peter]

“Extreme tiredness”?

 

[MeSci]

If the sound on the video at the end bothers you, you can switch the sound off while watching - I'm pretty sure there is no dialogue.

 

[NelliePledge]

Based on the ME Association press release. They seem to be getting quite a lot of coverage. I’ve only been taking notice a couple of years anyone think it’s any more coverage than before - or not?

 

[Lisa108]

The subtitle reads:
"I often feel like a 100-year-old trapped inside a young person’s body."

Well, I feel the other way round. Which makes a lot more sense to me...
The idea of a 100 year old having a young person's body surely would be something favoured?

ETA: I wrapped my head around this. It makes sense in a way that our disease is often not visible, so we may look young but feel differently.

For me, I still feel "young"(or age-appropriate), but unfortunately my body only has the capacity of a very old woman.

 

[rvallee]

“Extreme tiredness”?

To be fair, that is what the NHS is saying. The NHS is wrong, but it is what they are saying.

Journalism is expected to be more than reporting that one person is saying that it's raining and another saying that it's not, but on this they can't really overrule since the NHS is the sole medical authority on this. Very much GIGA.

 

[Little Bluestem]

When I loaded the Huffington Post article, I saw this:

HuffPost is part of Oath. Oath and our partners need your consent to access your device and use your data (including location) to understand your interests, and provide and measure personalised ads.

I clicked on "OK". I don't know what Oath is going to do when they find out my 'device' is a desktop PC.