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HRA registered CFS studiesthat could be of interest

Discussion in 'PsychoSocial ME/CFS Research' started by Esther12, Nov 1, 2017.

  1. Esther12

    Esther12 Senior Member (Voting Rights)

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    If they're going to assess the safety of a treatment, having information on compliance would be a useful part of that. If a 'GET' programme doesn't lead to patients increasing their activity levels then this programme being found to be safe should not lead to patients being reassured that it is safe for them to steadily increase their exercise levels.
    Viola, Trish, MEMarge and 2 others like this.
  2. Adrian

    Adrian Administrator

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    I find this one concerning. It would be reasonable to believe that the only reason GET isn't harmful in trials is because those who would be harmed are not compliant. But they may appear so as they keep therapists happy or substitute activity. What evidence there is, I believe, suggests no great increase in activity with GET (or is it CBT).

    Its one of the criticisms that @Tom Kindlon makes around harm is that there is no data collection to demonstrate compliance.

    Here we have a trial aimed at testing measuring compliance with young people prior to doing it on adults - which I think is ethically very dodgy. It also worries me that young people may be more compliant and hence harmed.
    ladycatlover, Sean, Esther12 and 3 others like this.

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