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Health Concerns for Survivors of Ebola

Discussion in 'Health News and Research unrelated to ME/CFS' started by rvallee, Oct 8, 2019.

  1. rvallee

    rvallee Senior Member (Voting Rights)

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    A Twitter user pointed out this interesting tidbit: survivors of Ebola seem to display similar symptoms to ME. This isn't particularly new but potentially very interesting.
    Is it closer to ME or PVFS? Are those different other than a better prognosis for the latter? Not sure enough time has passed to be certain. Would have been interesting to know what % and whether there is a spectrum.

    Really past time for medicine to get its act together and accept that the calculus isn't a simple matter of active infection = illness, no active infection = all done and resolved.

    https://www.cdc.gov/vhf/ebola/treatment/survivors.html
     
    Sarah94, duncan, Lisa108 and 15 others like this.
  2. Mij

    Mij Senior Member (Voting Rights)

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    There are references to post-Ebola virus syndrome since 2014.
     
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  3. Obermann

    Obermann Established Member (Voting Rights)

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    Interesting. It is already well known that hemorrhagic fevers—the group of diseases that ebola belongs to—is a cause of post-viral fatigue syndrome.
    upload_2019-10-9_8-38-17.png
     
    rvallee likes this.
  4. Sly Saint

    Sly Saint Senior Member (Voting Rights)

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    I think (benign)ME and PVFS are classified by the WHO as the same.

    but re the post-ebola virus syndrome:
    from Wiki
    https://en.wikipedia.org/wiki/Post-Ebola_virus_syndrome

     
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  5. Mithriel

    Mithriel Senior Member (Voting Rights)

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    With the knowledge we have now, I think it is fair to say that post infectious syndromes have ME-like symptoms without the broken aerobic system and the PEM. Far too often we hear that things are like ME from professionals who think ME is chronic fatigue.

    ME may present as a PVS in the early stages but i believe that a diagnostic test will pick out the differences.

    My husband had a bad PVS that lasted almost a year but it never crossed our minds that it had anything in common with my ME. He had fatigue mainly while I had fatiguability and neurological symptoms.
     
    Annamaria, andypants and Trish like this.
  6. duncan

    duncan Senior Member (Voting Rights)

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    One item here is flat-out wrong. Whatever you may think of the Lyme controversy, even the most strident and conservative IDSA stalwarts will admit that Borrelia Burgdorferi can cause persistent infection. They think it's exceptional, but they admit it does happen. ILADS advocates contend not only can it happen, it happens with frightening frequency.

    My point here is this chart says Bb is an organism causing no persistent or latent infection. If they've got that wrong, what else here is written as a certitude that is not, ie, what else have they gotten wrong in this chart? What "facts" are out there in medicine that are taught as "facts" but are simply wrong? How prevalent is misinformation?
     

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