Germany's "National Decade Against Post-Infectious Diseases"

If they soak up money that could be spent on good studies (as in studies with a decent rationale), they kind of are standing in the way at least. That can put is back just as many years as a BPS study.
From what I, as a layman, know of our German healthcare system, our administration and political leadership, it goes without saying that a great deal of money will be wasted on nonsense.But there are also some people who are serious about it, who are trying to carry out proper research, and who will also receive funding. Out of 50 million a year, perhaps 10 million – given the level of waste in other areas of public spending – if we’re lucky. The rest will mostly be useless, I suppose
 
Are there any studies we want to see that we could get German advocates to lobby for? Any replications or any areas we think would be important to look at? Any basic lab work following on from DecodeME?
maybe replicate the early dutch brain bank results? as in establish an mecfs brain bank.
proper pem sampling.
Long term funding and expansion of the NKSG throughout germany.
 
maybe replicate the early dutch brain bank results? as in establish an mecfs brain bank.
proper pem sampling.
Long term funding and expansion of the NKSG throughout germany.
We´d have to contact the people in the "Steuerungskreis" of the national decade. There is only one patient organization in it and that is the "Deutsche Gesellschaft for ME/CFS". they are very knowledgeable but the question is whether they will heard.
other members can be viewed here, mostly scientists with no - a lot knowledge in LC/PAIS and politicians:1774346525333.png
 
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