FY19 Funding for ME/CFS restored

[Emily Taylor]

Good news! The ME/CFS line item at the CDC was funded in the recent budget compromise announced today. Committee report language was included, unedited, from advocacy efforts earlier this year..

You can see SMCI's statement here: https://solvecfs.org/wp-content/uploads/2018/09/FY-19Labor-HHS-statement-9.14.18-final.pdf

You can see the report language here: https://www.congress.gov/congressional-report/115th-congress/senate-report/150/1

Great job everyone and thank you for standing with us! Let’s continue the fight for FY20 and get even more results!

 

[Roy S]

That's very good to know. Could you post all of our report language?

 

[Esther12]

Is it just that every year they test to see if people will complain when they scrap it?

Thanks for letting us know it's back in this time.

 

[Roy S]

Is it just that every year they test to see if people will complain when they scrap it?

LOL Sometimes more recently it looks like that. It is part of a very complex and often misunderstood yearly process.

Here is a related article.

"Congress has approved a $2 billion raise, to $39.1 billion, for the National Institutes of Health (NIH) in a 2019 spending bill"


http://www.sciencemag.org/news/2018/09/nih-gets-2-billion-boost-final-2019-spending-bill

 

[Sean]

 

[LoKee]

They threaten to defund so we'll be grateful when they toss us scraps.

 

[Alvin]

They threaten to defund so we'll be grateful when they toss us scraps.

Basically, the $5.4 million is an insult.
Additionally the NIH is doing us a favour by not stealing even that money like they used to do