Fundraiser for needy US patients:The American ME and CFS Society

Allele · Apr 7, 2018

https://www.crowdrise.com/o/en/campaign/help-desperate-patients-get-crisis-support

Help Desperate Patients Get Crisis Support

Between 836,000 and 2.5 million Americans suffer from ME/CFS. One quarter of these patients are severely ill, and are either bedbound or housebound. Severely ill patients are unable to work, and many are denied disability.

The financial crisis generated by a loss of income coupled with rising costs of medical care can force patients to forego necessary care and medication. In some cases, patients may even lose their homes and end up living in cars.

In order to assist patients in need, AMMES is setting up a crisis fund to provide one-time grants to patients for specific needs. The funds can be used to purchase a wheelchair, pay a medical bill, hire home care, secure adequate housing, and other basic needs.
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Allele · Apr 8, 2018

I'm not on social media--would those of you who are like to share this much-needed cause's plea?

Creek · Sep 25, 2018

The link says "not accepting donations."

Yessica · Sep 26, 2018

Creek said: ↑

The link says "not accepting donations."
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Hi, @Creek! Thank you for posting that question. I noticed that months ago and been meaning and wanting to update on the forums the way to donate (which I wish the crowdrise page had this on tooo).

Everyone interested please share this wherever you can.

A little bit of anything goes a long way and can make a big difference for those of us in such need. Can be life changing!

On the quoted link below it says campaign has end but you can still donate to it with a link to the information at AMMES.

https://ammes.org/category/fundraising/

AMMES’ Crowdrise campaign to raise funds for emergency aid for patients in financial crisis was successful! We raised $10,000 in online donations and in checks sent separately by donors. AMMES has already begun processing applications to the fund. A big THANK YOU to everyone who donated!

So any patients are disabled and unable to work. Assistance at the right time can go a long way. Our mission is to help patients and their families in practical ways. This is one of them.

This is the description that appeared on Crowdrise. The campaign ended on May 11, 2018. You can still donate to this fund HERE.

“Between 836,000 and 2.5 million Americans suffer from ME/CFS. One quarter of these patients are severely ill, and are either bedbound or housebound. Severely ill patients are unable to work, and many are denied disability. The financial crisis generated by a loss of income coupled with rising costs of medical care can force patients to forego necessary care and medication. In some cases, patients may even lose their homes and end up living in cars. In order to assist patients in need, AMMES is setting up a crisis fund to provide one-time grants to patients for specific needs. The funds can be used to purchase a wheelchair, pay a medical bill, hire home care, secure adequate housing, and other basic needs. All applicants will be required to provide written medical confirmation of their diagnosis, proof of financial need, and document the specific purpose of the grant. Where possible, a phone interview will be conducted. (Some severely ill patients cannot speak.) Any patient within the United States and its territories is eligible.”
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People can donate still! Here's the direct link to the donation page. Brain fog right now, not sure yet I guess you mention that you want the donation to go to help desperate patients get support.

https://ammes.org/donate/

I'm so thankful someone started this. It's been on my mind as well as other patients as something we wanted to figure out how to do to help those in need. If I get more health I want to find ways to contribute to this and get others to also.

Thank you so much to everyone that is involved in making this happen and to everyone that donated!

Please bump this periodically. Thanks.

Creek · Sep 28, 2018

Is there a way for patients to apply when they need assistance?

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Fundraiser for needy US patients:The American ME and CFS Society

Allele Senior Member (Voting Rights)

Allele Senior Member (Voting Rights)

Creek Established Member

Yessica Senior Member (Voting Rights)

Creek Established Member

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Fundraiser for needy US patients:The American ME and CFS Society

Allele Senior Member (Voting Rights)

Allele Senior Member (Voting Rights)

Creek Established Member

Yessica Senior Member (Voting Rights)

Creek Established Member

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