From the NHS : OSCAR - Online Support and Clinical Advice Resource

I was just browsing this site today : https://my-oscar.nhs.uk/

And I clicked on the link for advice on Pain Management. This, unexpectedly, then leads to the Chronic Fatigue Syndrome (CFS/ME) Care Pathway.

https://my-oscar.nhs.uk/care-pathways/pain-management/chronic-fatigue-syndrome-cfs-me-care-pathway

I haven't found any way of knowing that this page is where it is, other than by clicking on the link to Pain Management, which I thought was odd.

 

The guide they link to is interesting.

https://my-oscar.nhs.uk/documents/cfsme-service-primary-care-info-leaflet.pdf

Suggested by who? Based on what evidence?

Oh, I see it's one of those inspiring post-truth things. What a sophisticated understanding of the mind-body benefits of deceptive quackery they have.

 

"Leeds & West Yorkshire
CFS/ME Service
Monitoring Outcome of therapy
There is a National Outcome Database based in Bristol which collates anonymous therapy
outcome data from services across England. Leeds and West Yorkshire CFS/ME
Service has participated in this project from the outset, enabling us to benchmark the outcome of our
therapy, which has always been comparable or better on the number of outcome measures
monitored."

hmm

eta:
"
Biopsychosocial assessment and diagnosis led by Dr. Hiroko Akagi, Consultant
Liaison Psychiatrist and Clinical Lead.
There is also sessional input from a GP with a Special Interest in CFS/ME."

eta2:
"
Referrals for inpatient admission
–
Yorkshire Centre for Psychological Medicine
The in-patient element of the CFS/ME service is provided by the Yorkshire Centre for Psychological Medicine (YCPM) on Ward 40 at Leeds General Infirmary. This unit has facilities for inpatient assessment and rehabilitation of patients with severe CFS/ME.

 

I noticed the almost complete lack of references.

I'm also unclear why the CFS/ME pathway is hidden under Pain Management, with no clues to the fact it is even there.

I only posted about this, by the way, because people need to know what others are reading that may be complete rubbish.

 

Well thank goodness it's possible to replace a negative self-fullfilling prophecy with a positive one:

I first read about positive self-fullfilling prophecies from this book, which was kindly recommended to me by anonymous and unsolicited letter in 1983:



As an open-minded and optimistic 17-year old, I ordered the book from America and waited 6 weeks for it to arrive by surface mail.

Unfortunately I never have managed to become a millionaire, but as the book says, I'm probably not doing it right and should just keep trying. After all, it's only been 34 years. Joe Karbo was a millionaire (90% of his business was selling a book) so his method obviously works. Here's the man himself:

https://www.youtube.com/watch?v=ZiQXZu8tVfg

It's great to see the science of self-fullfilling prophecies incorporated into NHS treatment advice. Unfortunately it doesn't seem to have worked for the last 30 years either, but we're obviously doing it wrong and should just keep trying. Thankfully there is a Joe Karbo of Chronic Fatigue Syndrome (he's made a fortune from it) who is prepared to guide us:

https://www.youtube.com/watch?v=qrVO1s8u3K0