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Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences) Cuesta et al.

Discussion in 'Psychosomatic research - ME/CFS and Long Covid' started by Milo, Mar 29, 2019.

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  1. Milo

    Milo Senior Member (Voting Rights)

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    This is a nursing qualitative research paper from Spain. Paywalled.

    Fibromyalgia, Chronic Fatigue Syndrome, and Multiple Chemical Sensitivity: Illness Experiences

    Abstract

    Fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity can be considered contested illnesses.

    The questioning of the status of these conditions as real diseases reduces feelings of legitimacy in those affected.

    The purpose of this study was to analyze subjectivity construction processes in people with these diseases.

    A qualitative exploratory study was conducted from the perspective of hermeneutic phenomenology and ethnosociology.

    We used life stories for compiling data (13 informants were interviewed face-to-face), and sociological discourse analysis was developed.

    Three main categories were identified: (a) self and grieving; (b) images and practices relating to fibromyalgia, chronic fatigue syndrome/myalgic encephalomyelitis, and multiple chemical sensitivity; and (c) relationships with health professionals.

    This study shows that daily experiences of people living with these diseases are marked by stigmatization processes.

    The ultimate purpose of nursing care for people with these conditions should be to reduce their vulnerability and exclusion.

    https://journals.sagepub.com/doi/ab...&rfr_id=ori:rid:crossref.org&journalCode=cnra
     
    Last edited: Mar 31, 2019
    Milo, Mar 29, 2019
    #1
    Yessica, Hutan, Peter Trewhitt and 5 others like this.
  2. TiredSam

    TiredSam Committee Member

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    Oh good, so they can make up what they want then. I hope they made up something nice.
     
    TiredSam, Mar 31, 2019
    #2
    Medfeb and rvallee like this.
  3. TiredSam

    TiredSam Committee Member

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    TiredSam, Mar 31, 2019
    #3
    Yessica, adambeyoncelowe and rvallee like this.
  4. Milo

    Milo Senior Member (Voting Rights)

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    Milo, Mar 31, 2019
    #4
    Sly Saint likes this.
  5. Trish

    Trish Moderator Staff Member

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    Well if nurse read this abstract and come away with a determination to reduce stigmatisation and focus on 'reducing vulnerability and exclusion' that seems a pretty good thing to me. So long as the reducing exclusion bit doesn't mean trying to encourage us to get out and socialise more.
    Hard to tell from a brief abstract.
     
    Trish, Apr 1, 2019
    #5
    Yessica and adambeyoncelowe like this.
  6. Lisa108

    Lisa108 Senior Member (Voting Rights)

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    Lisa108, Apr 1, 2019
    #6
    Yessica likes this.

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