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Factors impacting the illness trajectory of post-infectious fatigue syndrome: a qualitative study of adults' experiences (2017) Jason et al

Discussion in 'BioMedical ME/CFS Research' started by hixxy, Dec 15, 2017.

  1. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    Those who promote CBT and GET can give the impression that people can get stuck at low levels of activity unnecessarily but this does not seem like the experience for this cohort:
     
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  2. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    I'm quoting an awful lot of this, perhaps too much, I just think it's a useful paper highlighting what patients and patient organisations say and have experienced.
     
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  3. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  4. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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    "Poor economy" equals poor financial circumstances

     
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  5. Jan

    Jan Senior Member (Voting Rights)

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    Is there any chance the Nice committee will see this? This study perfectly describes patients lived experience. Everyone in health care ought to read this.
     
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  6. Wonko

    Wonko Senior Member (Voting Rights)

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    I would imagine they may define "evidence" in such a way that this isn't.

    Cynical...me?
     
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  7. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  8. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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  9. strategist

    strategist Senior Member (Voting Rights)

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    Wow this paper is pretty good.

    Joke: clearly they haven't had the chance to be cured in 48 hours by a LP therapist :D.
     
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  10. Tom Kindlon

    Tom Kindlon Senior Member (Voting Rights)

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