Evidence of GET style therapy harm in me/cfs

[nafione]

I suspect there a good threads discussing this topic but can’t figure out the right keywords to find what I’m looking for (maybe I’ve done too much today and need to go to bed)

I’m exploring whether misdiagnosis or delayed diagnosis of ME/CFS could support a viable legal claim (e.g., negligence). It appears the core elements of a cause of action could be met—duty, breach, causation, and damages.

I’m especially interested in evidence showing that pushing past limits causes harm. Someone mentioned to me that the pace data might do so after it was rebutted/reviewed?

I’ve been brainstorming about advocacy for a while, but I’ve also learned that there is nothing like a lawyer and court of law for enacting change. The moment it is more expensive to dismiss us, we will get a lot more attention.

 

[Jonathan Edwards]

We have discussed this at length in the past. I do not see any possibility of there being evidence that could be used legally. Proving harm would require a formal study of harms in a controlled trial and we simply do not have that.

 

[Trish]

We gathered some of the harms evidence as part of our campaign to get Cochrane to withdraw their review that recommends GET. (unsuccessfully - they refused to see sense)

https://www.s4me.info/threads/s4me-...cfs-exercise-therapy-review.34973/post-521800

 

[wallfish]

We gathered some of the harms evidence as part of our campaign to get Cochrane to withdraw their review that recommends GET. (unsuccessfully - they refused to see sense)

Wow. Thank you Trish and others, for your effort in that awful process. Hurts to read.