Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review, 2020, Farragher et al

[Dolphin]

Free full text: https://journals.sagepub.com/doi/full/10.1177/0308022620904327

Energy management education and occupation-related outcomes in adults with chronic diseases: A scoping review

5 of the 44 studies were CFS studies

Janine F Farragher, Sarbjit V Jassal, Sara McEwen,
Helene J Polatajko
First Published April 10, 2020 Review Article
https://doi.org/10.1177/0308022620904327

Article Information

Article first published online: April 10, 2020
Received: May 22, 2019; Accepted: January 13, 2020

Janine F FarragherSarbjit V Jassal2, Sara McEwen3, Helene J Polatajko4
1Department of Community Health Sciences, University of Calgary, AB, Canada
2Department of Medicine, University of Toronto, ON, Canada
3Department of Physiotherapy, University of Toronto, ON, Canada
4Department of Occupational Science & Occupational Therapy, University of Toronto, ON, Canada

Corresponding Author:

Janine F Farragher, Foothills Medical Centre, 3330 Hospital Dr. NW # G236, Calgary, AB, T2N 4N1. Email: janine.farragher@ucalgary.ca

Abstract
Introduction
Fatigue is a pervasive symptom of chronic disease that often interferes with occupational performance. Our objective was to describe what is known about energy management education and occupation-related outcomes in adults with chronic diseases.

Methods
Seven electronic databases were searched for relevant literature published before August 2019. Eligible articles were full-text, available in English, and studied energy management education in adults with a chronic disease. The first author assessed article eligibility with validation from a second reviewer, extracted characteristics of included studies, and described them using descriptive statistics. A narrative synthesis of findings was conducted for each chronic disease population.

Results
Forty-four studies addressed eight different chronic disease populations. The most common program delivery format was face-to-face in a group setting (42%), 39% of programs were informed by a learning theory, and their median cumulative length was 8 hours. Positive outcomes were associated with a specific, group-based energy management program in people with multiple sclerosis. The evidence on other energy management programs and in other chronic disease populations was more limited and inconclusive.

Conclusions
Further research is needed to understand the impact of energy management education in chronic disease populations beyond multiple sclerosis, and its impact on occupational performance.

Keywords
Energy management, fatigue, adaptive pacing, work simplification, occupational therapy, chronic disease

 

[MSEsperanza]

The paper isn't open access anymore (at least for me) --
sci-hub link: https://sci-hub.se/10.1177/0308022620904327

 

[MSEsperanza]

Haven't read the paper, but was surprised by this:

Exclusion criteria

•The fatigue intervention included one or more other fatigue management approaches (for example cognitive-behavioral therapy, exercise) in addition to energy management education.

So there are CBT-and-exercise-free 'education programs' for coping with fatigue in chronic diseases?

@dave30th

 

[ME/CFS Skeptic]

So there are CBT-and-exercise-free 'education programs' for coping with fatigue in chronic diseases?

Yes but there isn't that much research on it, I think.

I think pacing in ME/CFS comes from and is included in this tradition of energy management techniques in chronic illnesses such as MS. There's however another interpretation of pacing with comes from the chronic pain literature which is more focused on increasing physical activity. I've tried to explain this in a comment to a paper by Antcliff and colleagues who are applying the second definition of pacing in the field of ME/CFS.

The PACE-trial and its limitations are briefly mentioned in this paper by the way

In CFS, a large RCT showed no effect of an extensive, individually delivered EME program on occupational performance, fatigue, physical performance, or mental health (White et al., 2011), but the validity of this trial and its conclusions have been questioned due to several methodological concerns since its publication (Jason, 2017; Wilshire et al., 2017), including concerns with the activity pacing intervention (Jason, 2017)