Dolphin
Senior Member (Voting Rights)
https://www.bmj.com/content/367/bmj.l6095.full
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Extract:
My concern is that hypermobile EDS, often self diagnosed, sits alongside chronic fatigue syndrome, fibromyalgia, and postural orthostatic tachycardia syndrome as labels sought by patients with central hypersensitivity. These patients need objective assessment and management, otherwise uncertainty fosters inappropriate beliefs and maladaptive behaviours. Some might resort to expensive treatments with no evidence base that could be harmful.
The 75% drop in incidence of chronic fatigue syndrome over the past 25 years indicates that general practitioners now understand the presentation well and give good advice, with good outcomes, without the need to medicalise.3 New labels just confuse everyone.
3 Collin SM, Bakken IJ, Nazareth I, Crawley E, White PD. Trends in the incidence of chronic fatigue syndrome and fibromyalgia in the UK, 2001-2013: a Clinical Practice Research Datalink study. J R Soc Med 2017;110:231-44. 10.1177/0141076817702530 28358988
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