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Dr Myhill’s complaint to GMC about PACE authors.

Discussion in 'General ME/CFS News' started by Robert 1973, Jan 15, 2018.

  1. NelliePledge

    NelliePledge Moderator Staff Member

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    Petition has reached 5000 now
     
  2. NelliePledge

    NelliePledge Moderator Staff Member

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    Update from Craig Robinson now more than 120 letters
     
    Allele, dangermouse, Amw66 and 5 others like this.
  3. Keela Too

    Keela Too Senior Member (Voting Rights)

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  4. Trish

    Trish Moderator Staff Member

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    Excellent letter, @Keela Too. You make your points very clearly and well. I hope they read it and take it seriously.
     
  5. MeSci

    MeSci Senior Member (Voting Rights)

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    Last edited: Mar 3, 2018
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  6. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

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    Excellent letter @Keela Too!

    That link gives me an error message too @MeSci.
     
  7. Keela Too

    Keela Too Senior Member (Voting Rights)

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  8. MeSci

    MeSci Senior Member (Voting Rights)

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    Yes - it works now.
     
  9. Barry

    Barry Senior Member (Voting Rights)

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    Excellent letter. I like the way you have noted how the PACE authors have never set the record straight for PwME (despite their being best placed to do so, and despite their proclamations of only wanting to do their best for PwME).
     
  10. adambeyoncelowe

    adambeyoncelowe Senior Member (Voting Rights)

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    Very useful. It's a shame they don't do this. I find pacing with a HR monitor really useful.
     
  11. Keela Too

    Keela Too Senior Member (Voting Rights)

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    Seems there are a few more doctors talking about this now.
     
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  12. Seven

    Seven Senior Member (Voting Rights)

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    This helps, but I do question the use on the POTs plp. If I go by mine, I would literally do nothing, and also I have a question that no doctor has been able to answer, Once I am on beta blockers, how do I know what my new AT is??? Do I use the old one? or do I have a new one???? How do I pace beta blocker vs not???
     
    Allele, adambeyoncelowe and Keela Too like this.
  13. Keela Too

    Keela Too Senior Member (Voting Rights)

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    I agree. I think in the end you learn your own personal boundaries. I have always has a higher than average HR and lower than average blood pressure.

    Also Sue Jackson has talked about beta blockers on her blog.
     
  14. NelliePledge

    NelliePledge Moderator Staff Member

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    I was disappointed when after having paid to see an M.E. specialist privately I was seeing my GP about a new sick note. I tried telling her that specialist had said I needed to use a heart rate monitor but she just wasn’t interested.
     
  15. NelliePledge

    NelliePledge Moderator Staff Member

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    Dr Ms petition is now on 5500 still ticking over but would be good if it could get more signatures before the deadline- 2 weeks to go I think.
     
    Allele, Nellie, Jan and 2 others like this.
  16. NelliePledge

    NelliePledge Moderator Staff Member

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    This petition has hit 6000 today around a week to go till they hand it in
     
  17. NelliePledge

    NelliePledge Moderator Staff Member

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    Did I mention there are over 130 complaint letters sent to GMC
     
  18. Barry

    Barry Senior Member (Voting Rights)

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    I've been making this observation over quite a long time now, because NI credits are linked to what kind of benefits you get.
     
  19. Barry

    Barry Senior Member (Voting Rights)

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    It will be interesting to see how they respond.
     
  20. Skycloud

    Skycloud Senior Member (Voting Rights)

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    I wonder when that will be. I can imagine it won't be soon.
     

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