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Dr Jose Montoya, Live Webcast from Stanford, Jan 18th 7PM PST

Discussion in 'General ME/CFS News' started by MErmaid, Jan 7, 2018.

  1. MErmaid

    MErmaid Guest

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    http://events.stanford.edu/events/743/74379/

    You may opt to attend the lecture in person at Hoover Pavilion (requires registration) OR choose to watch the live webcast.

    Presented by Stanford Health Library

    Chronic Fatigue Syndrome (CFS) is a complex, multifaceted disorder characterized by extreme fatigue and a host of other symptoms that can worsen after physical or mental activity, but do not improve with rest. This presentation will discuss clinical implications of recent scientific reports that are pinning down the development of this disease. Treatment implications and future avenues for research will also be discussed.

    You can watch this program via a live webcast at 7pm PST at the following web link:https://stanfordvideo.stanford.edu/healthlibrary

    Speaker: Jose Montoya, MD

    WHEN:
    Thursday, January 18, 2018
    7:00 pm – 8:30 pm
    WHERE:
    Stanford Health Library, Hoover Pavilion, Suite 201, 211 Quarry Rd., Palo Alto, CA 94304
    ADMISSION:
    No Fee. To register call 650-498-7826
     
    Last edited: Jan 7, 2018
  2. MErmaid

    MErmaid Guest

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    Bumping as a reminder ....
     
  3. MErmaid

    MErmaid Guest

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    Well maybe a “slight tap”, for those who bruise easily.
     
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  4. Trish

    Trish Committee Member

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    I make that a 3 am start, UK time, so for those of us in the UK, it's insomnia or waiting to see if there's a recording!
     
  5. oldtimer

    oldtimer Senior Member (Voting Rights)

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  6. MErmaid

    MErmaid Guest

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  7. MErmaid

    MErmaid Guest

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    Did anyone remember to order take out pizza? :emoji_pizza:

    Mine with Gluten Free crust please.

    How about beer? Is it still sitting out my car trunk, cause I was too tired to bring it inside earlier?

    Think I will hold off on the pastel colored unicorn poop Frosty swirls.

    I am making a run to the store, does anyone want me to pick anything?
     
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  8. Milo

    Milo Senior Member (Voting Rights)

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    Anybody lost the stream just a couple minutes ago and can’t get back in?
     
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  9. oldtimer

    oldtimer Senior Member (Voting Rights)

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    Yes!
     
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  10. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    Still dead, do they know its down?
     
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  11. Milo

    Milo Senior Member (Voting Rights)

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    It’s back on with questions and answers
     
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  12. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    It’s back!
     
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  13. MErmaid

    MErmaid Guest

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    I am glad few of us were able to watch most of the video
     
    Last edited: Jan 19, 2018
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  14. Forbin

    Forbin Senior Member (Voting Rights)

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    Due to a bad internet connection, I saw relatively little of the presentation.

    However, I did see a section in which Dr. Montoya mentioned that a paper involving an HLA test was "positive."

    If you look at the Ongoing Research page here and scroll down to the Published section, it says:
    [This section also points to the cytokine/severity paper published last summer, but I'm pretty sure that this is a separate study.]

    So, it sounds like they may have found a genetic similarity in the human leukocyte antigen (HLA) complex of at least some ME/CFS patients.

    According to Wikipedia:
    The presence of certain human leukocyte antigens can increase your risk of developing various conditions, but it does not mean that you will develop them.

    I could be wrong, but it sounds like they may have found preliminary evidence of a genetic predisposition for ME/CFS, at least in some patients.
     
    Last edited: Jan 19, 2018
  15. lansbergen

    lansbergen Senior Member (Voting Rights)

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    Predisposition would not suprise me.
     
  16. Milo

    Milo Senior Member (Voting Rights)

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    For a brief moment Dr Montoya expressed his desire to have a clinical trial with Tofacitinib. I forgot his reasoning but you can find out about the drug here
     
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  17. Sisyphus

    Sisyphus Senior Member (Voting Rights)

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    Is the video archived anywhere?
     
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  18. Diwi9

    Diwi9 Senior Member (Voting Rights)

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    @Milo - I'm glad you mentioned his referencing Tofacitinib. He mentioned it at the last CFSAC meeting and about trialling it, but I could not understand the name of the drug through his accent. I posted a question for the video interview with Dr. Montoya on S4ME and am eager to see if he discusses in more detail why this drug peaks his interest.
     
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  19. Milo

    Milo Senior Member (Voting Rights)

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    I believe the presenter said in a month or so
     
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  20. Barry

    Barry Senior Member (Voting Rights)

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    That could be very interesting, especially if predisposition to ME showed significant correlations with predisposition to other conditions, such as allergies etc.
     
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