Donate to build on the work of DecodeME

[Sasha]

The DecodeME site FAQs page has a donation link that goes here to an Action for ME website page that says: 'Help change lives. Help us build on the work of DecodeME by supporting future research into ME/CFS. Donations will be managed by Action for ME, and used towards research projects delivered in partnership with the University of Edinburgh, such as the Genetics Centre of Excellence and Sequence ME and Long Covid.'

Seems well worth donating to, to me!

You can also donate straight to Chris Ponting's lab, here.

 

[Utsikt]

You can also donate straight to Chris Ponting's lab, here.

I really wish they had support for Apple Pay pr it’s equivalents, or at least integration for cards saved in your browser. I don’t think I even know where my cards are nowadays! Will have to get someone to dig them up.

 

[SNT Gatchaman]

You can also donate straight to Chris Ponting's lab

Done.

 

[forestglip]

You can also donate straight to Chris Ponting's lab, here.

Also done. Let's get that whole genome study, SequenceME, or whatever else they've got cooking.

 

[V.R.T.]

The DecodeME site FAQs page has a donation link that goes here to an Action for ME website page that says: 'Help change lives. Help us build on the work of DecodeME by supporting future research into ME/CFS. Donations will be managed by Action for ME, and used towards research projects delivered in partnership with the University of Edinburgh, such as the Genetics Centre of Excellence and Sequence ME and Long Covid.'

Seems well worth donating to, to me!

You can also donate straight to Chris Ponting's lab, here.

Does anyone have an opinion where the best place to donate currently is? Like through AfME or directly to Chris Ponting's lab? I understand the final pieces on finalising this study will be done by Chris and a small team on limited funding so maybe that is the best place to donate initally? Or to AfME to be distributed as seen fit? I'm wanting to contribute but unsure which is currently best.

 

[Kitty]

I think when I can afford it I will donate to the lab directly, but also join AfME to support their work generally. I might not agree with everything they do, but the direction of travel is right. I've been impressed by their work with DecodeME, and they'll doubtless continue to play an important part going forward.

 

[Andy]

For what it is worth, given my experience of the last 5 years, I think that both are very much worth supporting. DecodeME is most definitely a product of cooperation between them both, and is a template for a way of working that will be used in the future. Donating to either of them helps enable more ME/CFS research in the future.

 

[MSEsperanza]

To facilitate sharing -- from Tom Kindlon:

"If you'd like to support the researchers behind #DecodeME with other projects eg #SequenceME www.clinicalresearchnewsonline.com/cln/pressrel..., here's donation link www.decodeme.org.uk/support-us/Alternatively donate directly to Prof Ponting's #MECFS researchdonate.ed.ac.uk/support/ME-C..."

(I'm not on Bluesky or other such social media myself)

 

[MSEsperanza]

And on Mastodon:

Tom Kindlon (@tomkindlon@disabled.social)

Attached: 1 image If you'd like to support the researchers behind #DecodeME with other projects such as #SequenceME (...

disabled.social

 

[Trish]

The DecodeME site FAQs page has a donation link

I didn't find the link on the FAQ page. Can you point me where to look.

 

[Sasha]

I didn't find the link on the FAQ page. Can you point me where to look.

You're better off not going to the FAQ page, because the link is well buried. Better to follow the direct link I give to the AfME page in my post.

The DecodeME site FAQs page has a donation link that goes here to an Action for ME website page #

 

[MSEsperanza]

You're better off not going to the FAQ page, because the link is well buried. Better to follow the direct link I give to the AfME page in my post.

Or on the DecodeMe website under "support us": https://www.decodeme.org.uk/support-us/