Do Women With Severe Persistent Fatigue Present With Fatigue at the Primary Care Consultation?, 2020, olde Hartman et al

Dolphin

Senior Member (Voting Rights)
This type of research on ME/CFS patients in theory might be interesting, though I have no idea what this paper is like.

https://econtent.hogrefe.com/doi/full/10.1027/2151-2604/a000402

Zeitschrift für Psychologie (2020), 228, pp. 93-99. https://doi.org/10.1027/2151-2604/a000402. © 2020 Hogrefe Publishing.

Do Women With Severe Persistent Fatigue Present With Fatigue at the Primary Care Consultation?

Tim C. olde Hartman
Department of Primary and Community Care, Radboud University Nijmegen Medical Center,
Nijmegen, The Netherlands

, Tomas P. Scheepers
Department of Primary and Community Care, Radboud University Nijmegen Medical Center,
Nijmegen, The Netherlands

, Peter Lucassen
Department of Primary and Community Care, Radboud University Nijmegen Medical Center,
Nijmegen, The Netherlands

, and Kees van Boven
Department of Primary and Community Care, Radboud University Nijmegen Medical Center,
Nijmegen, The Netherlands


https://doi.org/10.1027/2151-2604/a000402


Abstract.

Recent studies have shown underdiagnosis of severe persistent fatigue in primary care.

To study how patients with severe persistent fatigue present in primary care and whether they differ from patients with less severe fatigue and patients with no fatigue.

A 4-year retrospective database study combined with a questionnaire, including all female patients 25–50 years (n = 917) who are registered in one primary care group practice.

Based on the results of a validated self-administered questionnaire, patients were divided into three groups: patients with severe persistent fatigue (n = 42), patients with fatigue (n = 174), and patients with no fatigue (n = 246).

Data on frequency of consulting, reason for encounter, and diagnoses from 2009 to 2013 were obtained from the electronic medical health record. Data were analyzed using odds ratios.

Women with severe persistent fatigue more often were unemployed and had lower education. They visited the general practitioners (GP) more often than other women.

However, more than half of the women with severe persistent fatigue did not visit their GP with fatigue as reason for encounter at all during the 4 years of study.

A minority of the women with severe persistent fatigue received a psychological diagnosis or social diagnosis (36% and 19%, respectively) during these 4 years.

Underdiagnosis of severe persistent fatigue is partly a consequence of patients not presenting or reporting this to their GP. The reasons for this behavior are not clear.

chronic fatigue syndrome, fatigue, primary care, retrospective studies, questionnaire

Address for correspondence:

Tim olde Hartman,

Department of Primary and Community Care,
Radboud University Nijmegen Medical Center,
PO Box 9101,
6500 HB Nijmegen
The Netherlands
E-mail tim.oldehartman@radboudumc.nl
 
Perhaps researchers should step.into someone's shoes for a week and experience life .

If you are unemployed and of lower education then life is probably one that is incomprehensible to researchers. Women are often the glue that holds fragile, stressful situations together and can suffer for it. I have no problem comprehending that they would be knackered, and that persistent fatigue carries other health possibilities. The fact that they keep turning up perhaps should be seen as something is wrong, they don't necessarily know what, but expect some expertise to be applied

Fatigue is a woolly term . Presentation at primary care provider can be an asymmetrical power balance. Then of course there is the possibility, highlighted often here, that go records are dangerously inaccurate.

If GPs don't listen and don't record accurately is it any wonder things are missed .
From a twitter thread from a # pwme. A number of missed , treatable diagnoses , could be equally applicable for many others


 
Women with severe persistent fatigue more often were unemployed and had lower education. They visited the general practitioners (GP) more often than other women.
If you take a sampling of patients from a GP practice, it's obviously going to skew results by not factoring in those who have simply given up trying to get a GP to do their job. This is bad inference. Especially as it's typically advised that unless there are specific reasons for it, healthy young people do not need to take regular appointments with a GP. In my country I think it's only around 50 that GPs are advised to make regular check-ups. When I got sick, I had not seen my GP in something like 6 years. This is pretty typical and it's expected that sick people would naturally have more contact with health care than healthy people advised not to do that unless necessary.
However, more than half of the women with severe persistent fatigue did not visit their GP with fatigue as reason for encounter at all during the 4 years of study.

A minority of the women with severe persistent fatigue received a psychological diagnosis or social diagnosis (36% and 19%, respectively) during these 4 years.

Underdiagnosis of severe persistent fatigue is partly a consequence of patients not presenting or reporting this to their GP. The reasons for this behavior are not clear.
And this is the explanation. Patients who would be categorized in this "with severe fatigue" get the message that they are not welcome and give up. Which happens to literally be the point of doing that, the entire premise for this approach is to exclude those patients from medical practice because they are too expensive and annoying and we get the damn message that we are not welcome.

And then there's the fact that there is no such thing as being diagnosed with severe fatigue, or even fatigue. It's a symptom, not a diagnosis. So that's hardly surprising because unlike anxiety, which is equally untestable, does get "diagnosed" even though it consists of nothing more than "are you anxious?" "I guess" "OK then a diagnosis of anxiety it is".

Nevermind that, again, fatigue is rarely ever the only symptom and almost never the most significant one, it's the obsessive focus of zealots that created this artificial supercategory out of the most common symptom in all of medicine.
The reasons for this behavior are not clear.
Other than being officially advised, you mean? That seems pretty clear. It's literally advised. I'm not sure what could possibly be hard to understand here. When you insult people over something they stop bringing it up. The insults are explicitly on purpose based on a belief system meant to discourage exactly this. The response is obviously not to bring it up, in part because it immediately becomes the obsessive focus from a psychological waste of efforts.

It seems like this could get somewhere but it's hard to tell without the full paper. So close to getting it, still struggling with basic cognitive dissonance, though.
 
Just out of interest I clicked on each name in the first quote box in post #1. The first three names only returned the paper shown in post #1. The fourth name returned 8545 results. I'm not sure what this is telling me!
 
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