Disability Tax Credit in Canada Difficult for Invisible Illnesses

The application for the Disability Tax Credit does not 'fit' our reality. I was receiving the DTC for over 25 years, but it appears that the CRA has made it more difficult to obtain in the last few years.

https://globalnews.ca/news/6474047/canadians-disabilities-can-lose-tax-credit/

 

iirc about the PKU tax court decision, one of the key criteria is that more than 14 (?) hours per week must be required for illness treatment/support (or whatever language they use).

Theoretically, since resting / pacing is key for ME patients not to become more disabled, it could be argued that all hours a ME patient needs to be horizontal (outside of over night sleep) during the day is treatment.

If I logged the amount of hours during the day I need to be horizontal over the course of a week...