Oh I definitely mean this when healthy, where there is no pathological reaction to exertion. And so do they, hence why so many professionals are utterly confused. And why pwME are confused in turn, because we are simply not talking about the same thing, even though they overlap.
I don't think we're ever getting through with language. Medicine doesn't work with subjective experience, mostly because nothing does. It's a human thing. Wherever a problem requires someone with authority to understand the subjective experience of others, without objective data to tell how to interpret that subjective experience, things break down. It's only when subjective problems are either made obsolete by objective means that they become solvable. Or when someone with the right experience wields that authority, but that's not available to us.
It's no different for people without authority, but it matters a lot less. Or only does in the aggregate, such as with elections. But this is has huge implications for us. It means that nothing we do can ever make much difference, as it can always be simply wiped out. Which is pretty demoralizing.
I still think it matters in the long term, we have created an extensive record that will nullify anyone using ignorance as a cheap excuse, but it certainly explains why it fails. It's nothing we're doing, it's just human nature. And of course one way we do get science to happen is by doing all the other stuff that doesn't work. So if it works at that, it still ends up working, just very slowly.
But it can also be entirely wasted by having the wrong people doing bad research. And it fails at any scale, RECOVER is just as a failure as this crap study, for pretty much the same reasons.
