DecodeME in the media

Hutan

Hutan

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This thread is for media and social media items about DecodeME following the release of the results, and for discussion about the media items.

For the analysis of the DecodeME results, there will be a research thread for the paper which we will link here.

Edit:
The preprint thread here:
Initial findings from the DecodeME genome-wide association study of myalgic encephalomyelitis/chronic fatigue syndrome, 2025, Boutin et al

Simon McGrath has written and article for the DecodeME website explaining the research.
Thread here:
DecodeME blog: X marks the spot where ME/CFS biology can be discovered


Some links to coverage:

Press release - University of Edinburgh



6 August 2025

Chris Ponting on the BBC - limited to UK viewers

Watch BBC Scotland live - BBC iPlayer

Watch BBC Scotland live on BBC iPlayer.
www.bbc.co.uk www.bbc.co.uk

www.newscientist.com

Key genetic differences found in people with chronic fatigue syndrome

People with chronic fatigue syndrome, also known as myalgic encephalomyelitis, appear to have eight genetic signals that differ from those without the condition
www.newscientist.com www.newscientist.com

www.telegraph.co.uk

ME is a real illness, genetic study shows

Breakthrough provides ‘credibility and validity’ for sufferers of the disease known as chronic fatigue syndrome
www.telegraph.co.uk www.telegraph.co.uk
Without paywall: https://archive.ph/BSpnr

Financial Times: https://www.ft.com/content/b82711ca-0842-4e73-9475-52435997e349

www.theguardian.com

Scientists find link between genes and ME/chronic fatigue syndrome

Large study suggests people’s genetics could ‘tip the balance’ on whether they would develop the illness
www.theguardian.com www.theguardian.com

https://www.sciencemediacentre.org/...deme-genome-wide-association-study-of-me-cfs/

www.independent.co.uk

The key genetic difference ME sufferers have from others – and what it means

Scientists said the findings offer the first robust evidence that genes contribute to a person’s chance of developing the disease
www.independent.co.uk www.independent.co.uk

www.thetimes.com

Breakthrough genetic study offers treatment hope for ME patients

Experts say ‘groundbreaking’ findings will be transformative as well as helping to end myth that the condition is ‘all in the mind’
www.thetimes.com www.thetimes.com
(Alt links for the Times piece: Archive.ph, PrintFriendly)

Channel 4 news - 9 minute segment

Edit from Trish. Summary of everything on this thread up to the linked post
 
Last edited by a moderator:
@Andy im pretty close with several reporters in the U.S. who have covered ME & LC over the years. If these connections can help with any media coverage of this (if results dictate) just let me know and I can reach out to any to gauge interest
 
Dakota15 said:
@Andy im pretty close with several reporters in the U.S. who have covered ME & LC over the years. If these connections can help with any media coverage of this (if results dictate) just let me know and I can reach out to any to gauge interest
Click to expand...
Should they want to reach out to the University of Edinburgh then our contact in the UoE PR team is Jess Conway, jess.conway@ed.ac.uk, and she can coordinate such things as interview requests.
 
8 hits apparently
Nightsong

Post in thread 'DecodeME in the media'

New Scientist:

www.newscientist.com

Key genetic differences found in people with chronic fatigue syndrome

People with chronic fatigue syndrome, also known as myalgic encephalomyelitis, appear to have eight genetic signals that differ from those without the condition
www.newscientist.com www.newscientist.com

The Telegraph:

www.telegraph.co.uk

ME is a real illness, genetic study shows

Breakthrough provides ‘credibility and validity’ for sufferers of the disease known as chronic fatigue syndrome
www.telegraph.co.uk www.telegraph.co.uk
  • Like
 
www.decodeme.org.uk

X marks the spot where ME/CFS biology can be discovered - DecodeME

06 August 2025 Scientists, people with ME/CFS, and their charities came together to create DecodeME, the world’s biggest ME/CFS study – and its results are striking. 18,000 people with ME/CFS gave their DNA, enabling DecodeME to reveal eightgenetic signals for the illness. These signals indicate...
www.decodeme.org.uk www.decodeme.org.uk
 
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