I read the virology blog and left a comment (answer to Sten Helmfrid), but it seems it just disappeared?
Sten:
Cant really find the source here and now, but the estimation of 10-000-20.000 ME-patients in Norway, are based upon a long-going assumption of prevalence 0,1-0-2% of population when it comes to ME (CCC). That percentage not be right as you have pointed out, but I think that is the reason.
The 2000 per year and the "epidemic" bogus are troublesome, Landmark like to throw these numbers without any attempt for nuances. She did that in a Swedish newspaper in 2016 or 2017, like there should be substantial difference in actual cases in Norway and Sweden? Why? No attempt to explain, just the «naked» crazy numbers and that it? Wow. It really says all about lack of knowledge.
If there is one thing one would have to do, is look closely at possible reasons for numbers. There are complex factors for the diagnosis and misdiagnosis of ME. There may be an actual increase in patients from previous years. That could be reasonable, knowing that knowledge is somewhat better among some doctors, and it may actually be more people becoming ill. That should make way for a slight increase, but nowhere near these crazy numbers.
One thing we never should forget is that there have been and still are a significant number of misdiagnosis. One thing is lack of knowledge in primary care, a very important reason cause that is where these patients mainly belong and are "taken care of". Then we also do know, that even specialist care can get it fundamentally wrong when it comes to ME. The so-called National Competence Service have done absolutely nothing to raise proper awareness and addressing important topics. To juggle numbers are difficult in all circumstances, when it comes to ME at this time in history, almost if not impossible. We should try of course, but the quality of numbers at this time must be considered extremely low.