David Tuller - Trial By Error: The Australian Situation

This thread focuses the information about the Australian situation in David Tuller's recent blog.

It has been split from this thread which focuses on the news about Esther Crawley in David Tuller's recent blog.


So I arrived in Melbourne on Wednesday afternoon. I’ll be in Australia for several weeks for meetings, interviews and general information-gathering. I’ll post occasionally, but some of the information might be for future blogs and stories. I’ve conducted a Q-and-A about the general situation in the country with Penelope McMillan, the director of ME/CFS Australia Ltd.

But first, a news flash from the University of Bristol. I have finally heard back about Professor Esther Crawley’s new position—as director of the Centre for Child and Adolescent Health, a joint effort between Bristol and the University of West England, effective April 1st, 2018. Here’s a link to the announcement: http://www.bristol.ac.uk/ccah/news/2018/leadership-change.html
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http://www.virology.ws/2018/03/14/t...ituation-and-professor-crawleys-new-position/
 
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Just to clarify:

There are now two separate Q and As referred to above.

1. David Tuller and Penelope McMillan in David Tuller's blog

2. Emerge and David Tuller in the series of videos from the public meeting in Melbourne on 16 March 2018.

Thanks to @Sly Saint for posting the videos.

Both of these Q and As are worth looking at if you want to inform yourself about the situation in Australia.
 
The following is from the first Q&A - part of a reply by Penelope McMillan:

"PACE has had a significant influence in Australia, through PACE materials included in the Royal Australian College of GPs’ website. Approaches by patients and GPs to have the materials removed from the website have been unsuccessful to date. The CBT/GET requirement pervades Centrelink, the NDIS, the insurance industry, and many GPs’ approaches. PACE is also a major part of the Cochrane reviews for CFS. The Commonwealth Medical Officer confirmed that federal government policy is based on the Cochrane reviews."

...

Can anybody help identify documentary evidence supporting these assertions?

I've found this clinical practice guideline on the RACGP's website, endorsing GET:
https://www.racgp.org.au/your-pract...xercise-therapy-for-chronic-fatigue-syndrome/

The RACGP's website also links to pro-PACE articles in its journal, Australian Family Physician (AFP) but, in fairness, not all AFP articles on ME are pro-PACE.

Has Centrelink or NDIS published anything about requiring CBT/GET?

Has the CMO confirmed the federal government's adherence to Cochrane in public?
 
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Flying Dutchman said:
Has Centrelink or NDIS published anything about requiring CBT/GET?
Click to expand...
They have not published anything but numerous patients have received rejection letters for:
- dsp by Centrelink on the basis of not being fully treated because they haven’t done GET
- NDIS on the basis that ME/CFS is not a permanent condition because GET leads to significant recovery.
 
sea said:
They have not published anything but numerous patients have received rejection letters for:
- dsp by Centrelink on the basis of not being fully treated because they haven’t done GET
- NDIS on the basis that ME/CFS is not a permanent condition because GET leads to significant recovery.
Click to expand...

Is there documentary evidence of this available? I've seen lots of people reporting it, but it's always ideal to have copies of the documents.
 
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