David Tuller tours Down Under!

Here you go, @Sean:

The audio recordings from David Tuller’s meeting with members of the Sydney ME/CFS community on Sunday are now available. In Part 1, David talks about the history of his involvement with ME/CFS. In Part 2, David talks about his Australian tour and answers questions from the group. Many thanks to David James for these recordings!

Part 1:
https://www.dropbox.com/s/nqtwrm20doyv8df/David Tuller address Pt1.mp3?dl=0

Part 2:
https://www.dropbox.com/s/8csva27wbl5q788/David Tuller address Pt2 plus QA.mp3?dl=0
 
Details of Adelaide public event:

“David Tuller is coming to Adelaide! Don't miss this unique opportunity to hear David talk on PACE followed by a 'meet and greet'.

Tuesday 10th April at SACOSS, 47 King William Road, Unley, in the Marjorie Black Community Room.
Time: 7:15 for a 7:30 pm start, until 9 pm.

There is plenty of off street parking and the venue is wheelchair and MCS friendly. If you are able to help set up please come at 7 pm and if you are able to help out with the tea and coffee and packing up afterwards, we would be very grateful.
Gold coin donation at the door.”

This event is hosted by ME/CFS Australia (SA).
 
Simone said:
*** Free public lecture: University of Tasmania, College of Health and Medicine ***

“Chronic Fatigue Syndrome (aka ME) – Challenging the accepted dogma through research journalism”

Speaker: US journalist and academic, David Tuller

Date: Wednesday 4 April, 2018
Click to expand...

I realise it's a long shot, but is anyone here going to this lecture in Hobart?
 
"April 23

Location
Robina Community Centre- Conference Room

196 Robina Town Centre Drive

Robina, QLD 4226

Australia

Quality and safety for people with ME/CFS: Rethinking exercise guidelines.
Speakers:

  • Dr David Tuller, Senior Research Fellow, public health academic and journalist from the Centre of Global Public Health, University of California Berkeley. Crowdfunded to gather information about biomedical research into the disease in Australia and learn from the ME/CFS community.

  • Therese Fossheim, Senior Physiotherapist and Exercise Scientist at Physiologic, Robina. Therese is also an experienced metabolic consultant who helps people with ME/CFS to use objective heart rate monitoring to better manage their energy envelope.

  • Kathy Dallest is a person with ME/CFS for over 18 years and is the Fibromyalgia and CFS Gold Coast support group facilitator. Having worked in health for many years she now advocates for the ME/CFS community and is especially interested in quality and safety."
https://www.eventbrite.com.au/e/qua...ercise-guidelines-tickets-44750821913?aff=es2

 
I was in Hobart yesterday to meet David Tuller and listen to his presentation at the University of Tasmania. He spoke to an audience of 40 or so who were mostly patients and carers with a handful of medical students and professionals. He spoke very clearly and passionately about the nonsense of the PACE trial and I thought it was well received. There wasn't anything in it that I didn't already know but it was great to meet and hear it from the person who has been so influential in exposing the absurdity of PACE.

The interesting thing for me was to meet a Hobart based neuroscientist in the audience with an interest in understanding how blood flow is regulated in the brain. He seems to be taking an interest in ME and is planning research which will involve an Australian ME biobank that is apparently in the process of getting off the ground.
 
Yes, I was very encouraged to see that even at U. of Tasmania there is interest in advancing biomedical research. The neuroscientist had trained at Oxford and knew my buddy Michael Sharpe but was 100% on the non-BPS side of the issue. He said he had definitely sensed a change in attitude toward the illness in the last year or two. It was great to hear that.
 
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