1. The 'News In Brief' post for w/c 8th October is now available Guest, click here.
    Dismiss Notice

Daily Mail: Royal Wedding harpist on her diagnosis of ME/CFS

Discussion in 'General ME/CFS News' started by Revel, Feb 9, 2018.

  1. Revel

    Revel Senior Member (Voting Rights)

    Messages:
    208
    Likes Received:
    1,688
    Inara, TiredSam, Louie41 and 16 others like this.
  2. Andy

    Andy Committee Member

    Messages:
    3,836
    Likes Received:
    28,848
    Location:
    Hampshire, UK
    Down vote the idiots, up vote the reasonable ones, no need to log in to do that.
     
  3. Valentijn

    Valentijn Not a moderator

    Messages:
    2,275
    Likes Received:
    13,199
    Location:
    Netherlands
    Generally very good, especially this bit:
    The usual quackery plug (hey, it's the Daily Mail after all):
    It sounds like she's improved and/or stabilized, not recovered:
    I think Dr Charles Shepherd did a great (and diplomatic) job of pointing out the same issues with the cause and extent of her recovery:
    Now to read the comments ... :cautious:
     
    Inara, Louie41, Webdog and 18 others like this.
  4. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

    Messages:
    1,201
    Likes Received:
    8,726
    Brave! I got through a fair few, down voting trolls, up voting anything positive, before my browser crashed. It was a relief to be honest!
    The first 'harping on' joke wasn't funny and the others even less so.
    The Mail is a fuckwit magnet.
     
    Inara, Louie41, ladycatlover and 11 others like this.
  5. Valentijn

    Valentijn Not a moderator

    Messages:
    2,275
    Likes Received:
    13,199
    Location:
    Netherlands
    I'd noticed that :p On the plus side, the trolls were extra daft and easy to refute.
     
    Inara, Louie41, ladycatlover and 7 others like this.
  6. Dr Carrot

    Dr Carrot Senior Member (Voting Rights)

    Messages:
    182
    Likes Received:
    1,800
    I'd file this under "not too bad" for a big publication. Shame to see Optimum Health Clinic get a plug, they seem to be everywhere these days. Still, clickbaity headline including the royals might mean that a few more people might read it than usual :)
     
    Inara, Louie41, ladycatlover and 12 others like this.
  7. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

    Messages:
    1,201
    Likes Received:
    8,726
    Shooting fish in a barrel! No fun at all when it's so easy.
    Having said that I'm going to have to go back and see what you said to them...
     
  8. Revel

    Revel Senior Member (Voting Rights)

    Messages:
    208
    Likes Received:
    1,688
    So, how come it's always me that finds these articles? Oh . . . :rolleyes:
     
    Inara, TiredSam, Louie41 and 12 others like this.
  9. Liv aka Mrs Sowester

    Liv aka Mrs Sowester Senior Member (Voting Rights)

    Messages:
    1,201
    Likes Received:
    8,726
    Oh, I'm so sorry - I didn't mean you @Revel! I meant the daft trolls.
    I'm only being snotty so I don't get sucked in to the side bar of shame and start caring about the Kardashians or Katie Price's ex husbands.
     
    Inara, Louie41, ladycatlover and 13 others like this.
  10. Revel

    Revel Senior Member (Voting Rights)

    Messages:
    208
    Likes Received:
    1,688
    No worries, @Liv aka Mrs Sowester! I only read it when I am "foggy", as the content doesn't tax me too much. :rofl:
     
    Inara, Louie41, ladycatlover and 11 others like this.
  11. Sly Saint

    Sly Saint Senior Member (Voting Rights)

    Messages:
    1,834
    Likes Received:
    15,140
    Inara, TiredSam, Louie41 and 14 others like this.
  12. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    525
    Likes Received:
    3,458
    Overall it's not a bad article. My daughter read it out earlier, but did not look at the comments.

    When I spent 12 weeks in hospital, mainly on my back (late 70s) I could only read The Express or the Mail. The others were too large and awkward when horizontal!
    I guess in those days there was less Celebrity Gossip.
     
  13. arewenearlythereyet

    arewenearlythereyet Senior Member (Voting Rights)

    Messages:
    1,541
    Likes Received:
    10,776
    Location:
    UK
    I got sucked into reading about Paul from s club 7.... How did that happen?....up voted all the good ones and down voted trolls though
     
  14. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    3,368
    Likes Received:
    20,184
    There are a couple of issues as I see it @ Perrier:

    Some (few) people do recover or at least improve significantly. Without a biomarker we simply cannot be sure that they have the same illness. It may be a variant, or better management in the early days or just luck.

    We are more likely to hear about those who have improved significantly. The rest of us are too ill and isolated.

    Celebrities are more simply more likely to attract attention and be newsworthy.

    Misdiagnosis is a big problem - for example Esther Rantzen's daughter had ME and was in a bad way. She had a miracle cure with the lightening process....bht still had to be very careful etc. In the end she turned out to be a coeliac.
     
    Inara, Louie41, Indigophoton and 6 others like this.
  15. Alvin

    Alvin Senior Member (Voting Rights)

    Messages:
    2,255
    Likes Received:
    11,256
    That grinds my gears, suffering for nothing and used as cannon fodder to abuse us :emoji_face_palm:
     
  16. Invisible Woman

    Invisible Woman Senior Member (Voting Rights)

    Messages:
    3,368
    Likes Received:
    20,184
    Yeah, and at one point Esther Rantzen was a household name (very popular TV presenter back in the day) so people would look at you and say : "didn't Esther Rantzen's daughter have that and she got better" in an accusing tone.

    Sigh
     
    Inara, Louie41, Indigophoton and 6 others like this.
  17. Luther Blissett

    Luther Blissett Senior Member (Voting Rights)

    Messages:
    1,565
    Likes Received:
    11,829
    The comment section was once analysed by adding quotes from Mein Kampf and seeing what the reaction was. The results were depressing.

    We must thank brave explorers like @Revel for their sacrifice in navigating the fetid swamps and reporting back to us of the strange sights and creatures encountered.
     
    Inara, TiredSam, Louie41 and 12 others like this.
  18. Valentijn

    Valentijn Not a moderator

    Messages:
    2,275
    Likes Received:
    13,199
    Location:
    Netherlands
    In this case it sounds like she stabilized and improved a bit, but hasn't recovered. She cannot do things like a normal person would, without having to worry about the consequences. Basically, it sounds like she's pacing and can do a bit more due to that.
     
    Inara, Louie41, Indigophoton and 9 others like this.
  19. Revel

    Revel Senior Member (Voting Rights)

    Messages:
    208
    Likes Received:
    1,688
    Cheers! Think of me as S4ME's very own "Indiana Jones and the Paper of Doom"! :rofl:
     
    Inara, Louie41, Indigophoton and 8 others like this.
  20. MEMarge

    MEMarge Senior Member (Voting Rights)

    Messages:
    525
    Likes Received:
    3,458
    Yes I thought Charles' comments about people who (are lucky enough to) improve, often do not fully recover to their previous levels of health and activity. NB My version of what he said.
    I think the article mentioned that she is off on tour soon, or at least back to public performance. I hope for her sake that she has built in plenty of rest etc.

    Also, there are millions of people in the world who work long hours at stressful jobs and do not end up with ME, why are they never mentioned!!!

    ME is NOT BURNOUT.

    Yes I know I am ranting at the "converted".
     
    Inara, Louie41, Webdog and 10 others like this.

Share This Page