Crowdfunding: Trial By Error: Reporting on ME, CFS, ME/CFS, "Medically Unexplained Symptoms," and now Long Covid, April 2022

[Barry]

@Sean, this last link doesn’t seem to work for me. Could it be the extra ‘/‘ on the end in contrast to the previous postings is problematic (for some?).

Yes that is the issue. Without the terminating '/' it is fine:

https://crowdfund.berkeley.edu/project/31347

 

[Barry]

As I've said many times, this crowdfunding is among my least favorite things to do. I wish I could figure out another method of funding my work, but I haven't come up with one. Unfortunately, it's not the kind of project that gets funded by major donors and foundations.

I should stop worrying about it David, no one else does ... except for the BPS folks, which is as good a reason as any for you to stop worrying .

 

[mango]

Done.

 

[Sean]

@Sean, this last link doesn’t seem to work for me. Could it be the extra ‘/‘ on the end in contrast to the previous postings is problematic (for some?).

Ah, you are correct. Sorry, folks.

[Fixed it.]

 

[MeSci]

Nearly there!

$66,719 raised, 99% of target.

https://crowdfund.berkeley.edu/project/31347

 

[Barry]

About 18 hours to go?

 

[Wonko]

$281 - in 18 hours is......achievable, especially as the US is now awake

 

[Tom Kindlon]

About 18 hours to go?

Plus 24 hours tomorrow.

 

[Jaybee00]

Conversely we don't yet have solid evidence it is the same. Strong indications suggest there is a strong overlap, but it would be very presumptuous to insist at this stage they are exactly the same. We just don't know yet.

Except that MECFS is diagnosed based on symptoms—if you meet the diagnostic criteria, then you have the disease. Otherwise we would have different diseases based on what your trigger was, which doesn’t make sense.

 

[Wonko]

$67,040

100% + a bit.

 

[Kalliope]

 

[dave30th]

It's done. thanks to all!

 

[Tom Kindlon]

.

 

[JemPD]

So pleased you're sticking with the project @dave30th

its a joy to be able to contribute, your work makes such a difference, and sadly is still so sorely needed