I am pursuing Chiari malformation and syringomyelia as potential differential diagnosis and believe it could be helpful if I chronicle the experience here for others who might be curious. While I have always felt ME was and is the appropriate diagnosis in my case, having been diagnosed after the CCC and generally feeling like my experience is very similar to that of most other pwME, I do have a couple of symptoms that makes me think I should still make sure I cross Chiari and SM of the list (like they should have been before the ME diagnosis was made). Beyond the significant overlap in symptoms between ME and Chiari malformation, the symptoms that make me want to check this out are - Explosive headaches in the back of the head triggered by coughing, straining etc - Significant pain and burning in the cape area (neck, shoulders, thoraic spine) - Numbing and tingling in face, arms/hands and legs MS has been ruled out multiple times already. I am very lucky to not only have access to free healthcare but more importantly a medical care insurance that have already provided me with a free GP video consultation resulting in a referral to a neurologist, which should lead to an insurance covered consultation within a week. My biggest concern at this point is whether neurologists in general have much experience and/or knowledge about Chiari. I think it is probably unlikely that I actually have a malformation, but I would like to feel confident that I had been evaluated by someone who has a clue. I know there are neurosurgeons around the country that see Chiari patients every week, but not sure about run of the mill neurologists.