Coyne: No, seats on the US Institute of Medicine advisory commitees are not for sale, despite what the Dutch Parliament was told

Cheshire

Cheshire

Senior Member (Voting Rights)
by James C Coyne November 16, 2017

How the Executive Director of the Health and Medicine Division of the IoM responded to Professor Pim van Gool, the President of the Dutch Health Council disparaging the reputation of the IoM in testimony to the Dutch Parliament.

A likely reason for this unprofessional behavior is that van Gool was motivated to discredit the IoM’s stance on myalgic encephalomyelitis/chronic fatigue syndrome (MEcfs) because a recent document fron the IoM undermines the status quo concerning the illness in the Netherlands..

The incident speaks to the trustworthiness and commitment of the Dutch Health Council to best evidence in evaluating policies concerning MEcfs. Patients and their carers and advocates would do well to be vigilant for the next move from the Dutch Health Council.
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https://www.coyneoftherealm.com/blo...le-despite-what-the-dutch-parliament-was-told
 
van Gool:

Institute of Medicine. That is… we want to say that is a bit like the American Health Council. It is not exactly comparable. They show a bit less scrutiny towards the interests of participants there. Amongst other things one can buy a chair to participate in the advisory process. That is an interesting business model but that is not the model we apply (Van Gool and Severens chuckle).
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It's like these guys are auditioning to be Bond villains. One thing's for sure: Chauvinism is alive and thriving in the world of medicine.
 
Cheshire said:
by James C Coyne November 16, 2017



https://www.coyneoftherealm.com/blo...le-despite-what-the-dutch-parliament-was-told
Click to expand...

https://www.coyneoftherealm.com/blo...le-despite-what-the-dutch-parliament-was-told
Following a citizens initiative the Dutch Parliament asked the Dutch Health Council https://www.gezondheidsraad.nl/en in 2015 to advise on ME. In March 2016 an advisory committee ME/CFS (ME/CFS was not the request!) was installed counting 10 members. 4 of them are explicitely MUS scientists. One of them is co-author of the editorial that hailed the PACE trial in the Lancet in 2011. http://www.thelancet.com/journals/lancet/article/PIIS0140-6736(11)60172-4/abstract In June 2016 the president informed members of Parliament about the process until then. In that meeting he made remarks about the IOM report. It was needed according to the president to add quality to the report considering new (Dutch) research was soon to be published. When asked to explain what the IOM is, he misinformed the MP's. Why did he do that? At least it is hard to believe that he is not correctly informed about the IOM himself, because according to the Council's website they are linked to each other. A specific research group in The Netherlands is very influential on the subject of ME and CFS. They are working closely together with the PACE-athors and with Esther Crawley on FITNET. It is this group that claim ME and CFS are based on false ilness beliefs and CBT/GET leads to improvement or even recovery. Very soon now, the Health Council will present their findings. To put it carefully, we have our doubts about that advice.
When I met Prof Coyne some weeks ago during the screening of Unrest in Amsterdam, he asked who this person was discrediting the IOM/NAM. I informed him about this case.
 
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